Personal ME Stories

The Hollow Man

Lost

  By Andrew O’Connor in ABC News.   The catastrophic collapse of Tony Wallace’s life began slowly and silently. An episode of flu. A persistent illness. A feeling of fatigue. A sense something was not so much wrong, as not quite right. Over time, his ambiguous symptoms have morphed into a condition that defies medical […]

The Suffering Of One Of Us Is The Story Of All Of Us: Pt I – REELing

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    By Kyle McNease in Health Rising.    (Kyle’s story of going from abundant health to a very severe case of ME/CFS, and then, when all looked bleakest, back to relative health, almost defies description. The length of his narrative, the elegance and directness of his writing, even the difficulty it sometimes presents, makes it unique […]

My ME And Me: ‘I Don’t Remember What It’s Like To Not Be Ill’

Lost

      By Hannah  Price in BBC News.   It’s hard not to feel suffocated by the stale air and sterile, white ceilings of a hospital ward. The incessant beeping and patient grumbling provides a constant, miserable soundtrack as you wish you were literally anywhere else. When I was admitted to hospital in February, […]

As I Age With ME

ME

  By Marianne Granger in #MEAction. In my forties I was moving forward fulfilling my drive to be a community organiser/communicator/coach (my day job) and also a screenwriter (a remnant of my earlier training and work as a stage actor). Being there for my grown children and reveling in the bliss of holding my grandchildren […]

Facing Skepticism From Others That My Illness Isn’t ‘Real’

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  By Rebecca Handler in The Mighty.   Those of us with chronic illness are often forced to wage two wars at once. Not only must we cope with the immeasurable impact of our illness, but many of us also face the burden of skepticism from peers, the medical community, friends, and even family. If you’re anything […]

The Question No One Ever Asks About Life With Chronic Fatigue Syndrome

ME !

  By Hannah Deal in The Mighty.   Have you ever felt unable to put an experience into words? As if the only way to truly get your thoughts across was to write about it? That’s sort of how I’m feeling about life right now. My life looks pretty good from the outside. In the […]

Devastating ME Leaves Teen Girl “Unable To Leave The House”

Lonely

  By Luke Traynor in The Echo.   A 17-year-old girl has become virtually housebound because of ME, which at its worst leaves her unable to lift her head from the pillow. Rosie Halsall has suffered from the illness since she was nine, and last properly attended school in Maghull in 2014. The teenager now has a bedroom on […]

The Difficulty Of Living With A Fluctuating Condition

Pacing

  By Sally Rudderty in The Mighty.   I don’t know about the rest of you, but there is such a difference between my good and bad days. Yes, I pace which is the number one advice for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). I pace till I’m blue in the face (not literally blue, you […]

As Summer Ends, A Warning To NIH

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  By Adriane Tillman in #MEAction.   Johanna Kaiser, a person who has had ME for decades, sent this open letter over Labor Day to Dr. Walter Koroshetz, director of the National Institute of Neurological Disorders and Stroke (NINDS) and Dr. Francis Collins, director of National Institutes of Health (NIH). Staff member Adriane Tillman only posted the article.  Dear Dr. Walter Koroshetz and […]

M.E. Meant This Blog Took Me Several Months To Write

Feeling sad

    By Isabel Walter in Huffpost.   On holiday in the Peak District in June 2007, three months after being diagnosed with ME, I sat down one afternoon with a pile of postcards and discovered I could no longer write. The words were clear in my head, but the pen in my hand made […]

The Hidden Struggle Of Being Young And Chronically Ill

Nervous System

  By Bethany Freeman in The Mighty.   I’m a 19 year old university student in semester break. It’s a Saturday morning. I woke up dehydrated and nauseas, absolutely exhausted (I didn’t sleep until around 4 a.m.), sore and feeling foggy. I’m sure I’m not alone in this feeling – many other young university students […]

6 Things To Be Proud Of If You Have Chronic Fatigue Syndrome

Proud to be ME

    By Clare Rudderty in The Mighty.   Society today places ever increasing value on achievement. Getting a job promotion, starting a family and running a marathon are all things to be celebrated and praised. But what happens if you have spent the last decade housebound and bedbound with myalgic encephalomyelitis/chronic fatigue syndrome ? What do […]

Don’t Judge A Book By Its Cover

ME

    As posted in ‘Not Just Tired’.   One of the most frustrating things about living with CFS/ME is that most of the time you don’t look ill, and so people really struggle to understand the fact that there’s anything wrong with you. CFS/ME falls into the category I have heard described as ‘invisible […]

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