POTS

Could Craniocervical Instability Be Causing ME/CFS, Fibromyalgia & POTS? Pt I – The Brainstem Series

Cort_Johnson

    By Cort Johnson in Health Rising.   Jeff had a typical ME/CFS onset: he was a young, healthy and active individual before being felled by a viral infection and a high temperature. The infection left him with headaches, dizziness, muscle weakness and pain, sound and light sensitivity, and a general sense of being […]

The Hummingbird: Could A Blood Flow Enhancer Help With Fibromyalgia, POTS And ME/CFS ?

Cort_Johnson

  By Cort Johnson in Health Rising. A Different Approach to Fibromyalgia “The effects of not getting good blood flow to your brain, joints and muscles?…. Fibromyalgia” – Vital Motion Erik Hiester D.O., is not your ordinary doctor. He’s an interesting blend of engineer and doctor. Hiester’s first love was biomedical engineering (B.S. and M.S.). Wanting […]

A Wing, A Prayer And Vicky Whittemore: The NIH And Chronic Fatigue Syndrome In 2018

Cort_Johnson

    By Cort Johnson in Health Rising.   “I think some people are angry for good reason.  This disease hasn’t gotten enough attention.” Vicky Whittemore   My partner and I made our way to Vicky Whittemore’s office in a building off the NIH campus. Security was tight as always. We signed in and were […]

Stagnant Hypoxia – Where Chronic Fatigue Syndrome And Hyperadrenergic POTS Meet ?

Cort_Johnson

  By Cort Johnson in Health Rising.   Despite the current lack of consensus as to the underlying biological basis of CFS, there is considerable evidence … to highlight an abnormality of the autonomic nervous system as a unifying pathological factor. Newton et. al. 2013 A fascinating case of research confluence took place a couple of […]

“Sticky Blood” – Antiphospholipid Syndrome, POTS, Chronic Fatigue Syndrome And Fibromyalgia – The Dysautonomia Conference #4

Blood Test

  By Cort Johnson in Health Rising.   This blog is part IV in a series of blogs covering the issues presented at the 2018 Dysautonomia International Conference in Nashville, Tennessee. As if we needed another syndrome.  Chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS), fibromyalgia (syndrome), irritable bowel syndrome (IBS) are old-timers in the ME/CFS/FM world. In the last […]

My Secret Life – M.E/CFS Kids And Motherhood

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  By Sarah Wells in My Stripey Life.   Having two lives, one of which you do not want other’s to know about. The life that everyone believes is your “true” life is one of complacency and subtlety, one in which the person is generally unassuming. However, in the second, “secret” life, the true essence […]

Through The Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – An Alternate Reality To ME/CFS ?

brain-power

  by Caroline Christian in Health Rising.   Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial hypertension to mold sensitivity (and more), the number of alternate or comorbid diagnoses associated with […]

Exercise Tests Suggest Autoimmunity Causes The Exertion Problems In Chronic Fatigue Syndrome, Fibromyalgia And POTS

Cort_Johnson

  By Cort Johnson in Health Rising.   Researchers and doctors get interested in ME/CFS in different ways. Many have a personal connection, but for David Systrom,  a pulmonologist, it was all about demand. He didn’t seek chronic fatigue syndrome patients out – quite the contrary.  When Systrom was given control of a clinical cardiopulmonary […]

When Strangers Judge Me For Sitting Down In A Random Place

POTS

  By Brittany Rogers in The Mighty.        I have a genetic condition called Ehlers-Danlos syndrome. Like many chronic illnesses, this causes widespread pain. It also brings along its co-morbid friends, like postural orthostatic tachycardia syndrome (POTS). POTS is a disturbance in your autonomic system, causing symptoms such as: dizziness, fatigue, lightheadedness, fast heart rate, low […]

Walking Problems

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Posted by tipsforme.   This post is aimed mainly at people with ME but some elements are relevant to fibromyalgia and POTS. Most people with ME (pwme) experience problems walking. The spectrum of this difficulty is wide, from people who don’t have the muscle power to get out of bed to people who appear averagely […]

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