Severe ME Awareness Day

Severe ME Day 8th August, 2018: Understanding & Awareness

Severe ME

POSTED BY MEADVOCACY ADVISORY-COMMITTEE.   “In my experience (ME/CFS) is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.” ( Daniel L. Peterson, M.D.) UPDATED AUGUST 2018 from the original MEadvocacy 2015 Severe ME Day Blog Myalgic Encephalomyelitis (ME) is a chronic, often severely disabling disease, that […]

Severe ME Day 2017; Sophia Mirza, Inflammation Of The Brain And Spinal Cord And The Role Of The Gut

Sophia Mirza

  From Let’s Do It for Myalgic Encephalomyelitis.   Severe ME day is an initiative of the 25% ME group for the severely affected. It is held annually on 8th August to commemorate Sophia Mirza’s birthday and it’s purpose is to remember and raise awareness of those deceased and severely affected by ME. Sophia Mirza (1973 – 2005) died in […]

8 August: Understanding And Remembrance Day For Severe Myalgic Encephalomyelitis

ME Drained

    By Jody Smith in Phoenix Rising.   August 8th, is Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis, an important day in the ME community. It’s a day that is intended to bring attention to those whose voices are the most quiet, whose presence is so easily overlooked. Their footprint leaves next to no mark. […]

Body Count: The Tragic Stories Of Severe ME

invisible inlless

  By Russell Logan in Shout About ME.   They’re known as the ‘invisible’ ones, the severe Myalgic Encephalomyelitis (ME) patients that governments, doctors, researchers and communities refuse to acknowledge. The US CDC even renamed the illness Chronic Fatigue Syndrome (CFS) after a single symptom ‘fatigue’ to deliberately downplay the illness, despite ME having a […]

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