Severe ME Awareness

Care for Someone With Severe Myalgic Encephalomyelitis

Severe ME

By Greg Crowhurst in ME Support.   Linda, my wife, collapsed over two decades ago and very quickly became bed bound. In the months leading up to her collapse, she had had several operations and a long chest infection. For almost two years prior to that she was in constant pain, experiencing severe pins and […]

Severe ME: I Had To Fight The People Supposed To Help Me

1_4kxXhaiPKSCp2p8lwV_Isw

    by Sam* In ME Australia.    Sam (*not her real name) is a teenager living in Australia’s largest city without access to treatment to help her. Sam was prescribed graded exercise therapy (GET) and cognitive behavioural therapy (CBT) repeatedly. After doing GET, Sam became housebound. Sam now has very severe ME and says […]

One Thousand Days In Bed — Living With Severe ME

Time

  By Ellie Rw in Medium.   One thousand days in bed. It sounds like a title of a children’s storybook, something with connotations of cosiness and contentment and sleepy smiles, maybe even a fairytale. But for me? Well, it’s my reality, and I have to admit it feels a thousand miles away from any […]

Body Count: The Tragic Stories Of Severe ME – Commemorating Severe ME Day On August 8

Severe ME

  By Russell Logan in SHOUTABOUTME.   “…the opposite of life is not death, it’s indifference” — Elie Wiesel They’re known as the ‘invisible’ ones, the severe Myalgic Encephalomyelitis (ME) patients that governments, doctors, researchers and communities refuse to acknowledge. The US CDC even renamed the illness Chronic Fatigue Syndrome (CFS) after a single symptom ‘fatigue’ to deliberately […]

Severe ME: Suffering Ignored And Denied Help

Severe ME

By Sasha Nimmo in ME Australia.   Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian patient organisations. In Australia, that is between 96,700 and 241,800 people (ABS population figures). Of those, 25% are so severely affected that they cannot […]

The York ME Community © 2015
Powered by Live Score & Live Score App