The ME Association

Research: Medical School Education On Myalgic Encephalomyelitis By Dr Nina Muirhead

From The ME Association. Overview Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex multi-system disease with a significant impact on the quality of life of patients and their families, yet the majority of ME/CFS patients go unrecognised or undiagnosed. For two decades, the medical education establishment in the UK has been challenged to remedy these […]

Open Letters To Healthcare Professionals From People With ME/CFS – Part 4 Lianne

From The ME Association. Against the background of a new NICE Clinical Guideline for ME/CFS (18 August 2021), which has the potential to improve healthcare provision for people with this condition, we have been focusing on health and social care and asking about your recent experiences, what it is you want from the NHS and […]

Slow-Onset ME

From Gwenfar’s Garden and other musings. This article was first published in the ME Association’s ME Essential magazine, Spring 2021, pages 32-33. Slow onset ME. You’ve probably never heard of it. It’s mentioned here and there, and on the ME Association website, but there are no explanatory leaflets or research articles. This isn’t anybody’s fault. It’s just that this […]

ME Association Statement on Exercise in ME/CFS and Long Covid

Russell Fleming, Content Manager, ME Association  The ME Association decided to issue this position statement on exercise and activity management in ME/CFS (and Long Covid) in light of recent discussions which have appeared on, for example, BBC Newsnight, and in the Guardian newspaper and that are continuing online. Please also read: ME Association Statement re: BBC […]

NICE Announce New Publication Date For The ME/CFS Clinical Guideline

  Russell Fleming, Content Manager, ME Association Dear Stakeholder,  Because of the large number of comments received during consultation on the ME/CFS guideline, and the additional work needed to respond to them fully, the publication date has changed. The guideline will now publish on 18th August 2021.  29 March 2021    The ME Association was expecting NICE (The […]

Forward-ME Call For Health Warning To Be Put On Existing NICE Guideline For ME/CFS

  From The ME Association. A highly influential UK campaign group is demanding that a health warning be put on the existing NICE guideline for ME/CFS – to try and stop more patients being damaged by graded exercise. Some 24 members of the Forward-ME Group – led by founder The Countess of Mar – have signed […]

New ! ME/CFS Family Impact Survey By Dr Nina Muirhead & Cardiff University

By Russell Fleming in The ME Association. We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members. This is a short and simple online survey designed to be accessible to all adults 18+, including severely affected patients. […]

Meet The Scientist: Professor Chris Ponting – DecodeME

By Dylan Murphy, Guest Blogger, ME Association. Professor Chris Ponting is Chair of Medical Bioinformatics at Edinburgh University and a Principal Investigator at the MRC Human Genetics Unit, Institute of Genetics and Molecular Medicine. His research group has made substantial contributions to protein science, evolutionary biology, genetics, and genomics. He has served on the editorial boards of […]

Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, And ME/CFS

  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. I am aware that some people with ME/CFS have a number of concerns about the amount of time and effort we are devoting to people with Post-COVID Fatigue and Post/Long-COVID Syndromes. In particular: — the possibility that people with post-COVID fatigue and post/long-COVID syndromes are […]

The ME Association End Of Week Research Round-Up

  By Charlotte Stephens, Research Correspondent, ME Association. We show below brief summaries of the research studies about ME/CFS that have been published in the last week, followed by the abstracts from those studies. All research relating to ME/CFS can be located in the Index of ME/CFS Published Research which is correct to the end of June […]

Raising Awareness Of Severe ME – A Call For Your Case Studies

      By Katie Meehan, Social Media Manager, The ME Association.  In the run-up to Severe M.E. Week (3rd August), we’re looking for people with Severe M.E. who would like to tell their stories. We want to talk about the key issues that affect arguably the most neglected section of our community, and plan on […]

ME Association Guidance: Coronavirus And ME/CFS By Dr Charles Shepherd | 24 March 2020

  From The ME Association.   Latest UK Govt. Guidance 24 March 2020: Last night, the UK Prime Minister launched sweeping restrictions that will impact on everyone. The announcement was the most stringent set of measures ever introduced in this country to prevent people leaving their homes – except for very good reasons. The only […]

Playing Nice With NICE

  From Dizzy Girl Writes.   In view of my last blog post, I have decided to email NICE to talk about my experiences of having ME under the current guidelines and to raise my concerns about their panel. The latest tweets I’ve seen suggest that their panel for the review of guidelines for treating […]

Flu Vaccination And M.E. (2018-19)

By Dr Charles Shepherd – 12 September 2018   Seasonal flu (also known as influenza) is a highly infectious illness caused by several types of flu virus. It spreads rapidly through small infected droplets that are coughed or sneezed into the air by an infected person. Even people with mild or no symptoms can infect other people. […]

ME Connect Helpline

Whereas this site is new and is still coming together, we will never pretend that we can be manned 24/7 to give help when maybe it’s needed.  There are other national ME sites that are more established that might be able to provide you a service when you most need it.  The ME Association has […]

Two major sponsors throw their weight behind the next ME/CFS research conference | Newcastle, 13-14 October 2015

‘WE’RE DELIGHTED TO HAVE THE SUPPORT OF THE WELLCOME TRUST AND ARTHRITIS RESEARCH UK’ People with M.E. need better treatment and support. This can only be achieved through increasing the quality of research; by coordinating a stronger collaborative approach to stimulate more research through bringing in expertise from outside the field and supporting early stage […]

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