The ME Association

Forward-ME Call For Health Warning To Be Put On Existing NICE Guideline For ME/CFS

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  From The ME Association. A highly influential UK campaign group is demanding that a health warning be put on the existing NICE guideline for ME/CFS – to try and stop more patients being damaged by graded exercise. Some 24 members of the Forward-ME Group – led by founder The Countess of Mar – have signed […]

New ! ME/CFS Family Impact Survey By Dr Nina Muirhead & Cardiff University

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By Russell Fleming in The ME Association. We are excited to announce a new international research study looking at the impact of ME/CFS on the quality of life of both patients and their family members. This is a short and simple online survey designed to be accessible to all adults 18+, including severely affected patients. […]

Meet The Scientist: Professor Chris Ponting – DecodeME

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By Dylan Murphy, Guest Blogger, ME Association. Professor Chris Ponting is Chair of Medical Bioinformatics at Edinburgh University and a Principal Investigator at the MRC Human Genetics Unit, Institute of Genetics and Molecular Medicine. His research group has made substantial contributions to protein science, evolutionary biology, genetics, and genomics. He has served on the editorial boards of […]

Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, And ME/CFS

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  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. I am aware that some people with ME/CFS have a number of concerns about the amount of time and effort we are devoting to people with Post-COVID Fatigue and Post/Long-COVID Syndromes. In particular: — the possibility that people with post-COVID fatigue and post/long-COVID syndromes are […]

The ME Association End Of Week Research Round-Up

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  By Charlotte Stephens, Research Correspondent, ME Association. We show below brief summaries of the research studies about ME/CFS that have been published in the last week, followed by the abstracts from those studies. All research relating to ME/CFS can be located in the Index of ME/CFS Published Research which is correct to the end of June […]

Raising Awareness Of Severe ME – A Call For Your Case Studies

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      By Katie Meehan, Social Media Manager, The ME Association.  In the run-up to Severe M.E. Week (3rd August), we’re looking for people with Severe M.E. who would like to tell their stories. We want to talk about the key issues that affect arguably the most neglected section of our community, and plan on […]

ME Association Guidance: Coronavirus And ME/CFS By Dr Charles Shepherd | 24 March 2020

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  From The ME Association.   Latest UK Govt. Guidance 24 March 2020: Last night, the UK Prime Minister launched sweeping restrictions that will impact on everyone. The announcement was the most stringent set of measures ever introduced in this country to prevent people leaving their homes – except for very good reasons. The only […]

Playing Nice With NICE

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  From Dizzy Girl Writes.   In view of my last blog post, I have decided to email NICE to talk about my experiences of having ME under the current guidelines and to raise my concerns about their panel. The latest tweets I’ve seen suggest that their panel for the review of guidelines for treating […]

Flu Vaccination And M.E. (2018-19)

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By Dr Charles Shepherd – 12 September 2018   Seasonal flu (also known as influenza) is a highly infectious illness caused by several types of flu virus. It spreads rapidly through small infected droplets that are coughed or sneezed into the air by an infected person. Even people with mild or no symptoms can infect other people. […]

ME Connect Helpline

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Whereas this site is new and is still coming together, we will never pretend that we can be manned 24/7 to give help when maybe it’s needed.  There are other national ME sites that are more established that might be able to provide you a service when you most need it.  The ME Association has […]

Two major sponsors throw their weight behind the next ME/CFS research conference | Newcastle, 13-14 October 2015

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‘WE’RE DELIGHTED TO HAVE THE SUPPORT OF THE WELLCOME TRUST AND ARTHRITIS RESEARCH UK’ People with M.E. need better treatment and support. This can only be achieved through increasing the quality of research; by coordinating a stronger collaborative approach to stimulate more research through bringing in expertise from outside the field and supporting early stage […]

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