Whitney Dafoe

It’s Not Your Fault

By Whitney Dafoe. think at some level we all blame ourselves for the symptoms and consequences of ME/CFS. Even if you truly know and believe it is a real physical illness I think in the back of all our minds there’s a little voice that tells us we could be doing better if we tried […]

Renowned Scientist’s Son Describes His Chronic Fatigue Syndrome: ‘A World Of Pain, Loss And Agony’

  By Johnny Dodd in People. Whitney Dafoe spent most of his 20s visiting doctors and undergoing tests to find an explanation for why he felt so weak and exhausted. “I was open to all possibilities,” recalls the one-time globetrotting, aspiring photographer, who often spent months at a time backpacking through remote locations around the […]

The Great Beyond

By Whitney Dafoe.   Having Severe ME/CFS is so close to being dead. There’s really no other way to describe the experience I have had. I don’t think it’s something that people who haven’t had severe ME/CFS can likely understand. Looking back at who I was when I had mild and moderate ME/CFS I’m not […]

Book Excerpt From The Puzzle Solver

By Tracie White in The Scientist. I smile and nod, and he smiles back. It’s like watching the image I’ve created inside my mind of this young man, built out of bits and pieces of stories and interviews and writings and photos, come magically to life. It is easy to like him, and I do like […]

A Geneticist’s Quest To Understand His Son’s Mysterious Disease

By Tracie White in The Scientist. Ronald Davis of Stanford University changed his focus to research on ME/CFS, the disease formerly known as chronic fatigue syndrome, in a bid to help his son and others like him.   About 10 years ago, Stanford University genomicist Ronald W. Davis began a new investigation into a mysterious […]

First In Our Superhero Series : The Whitney

    Written by Di in Stanford Wood Studio.   Di has had a fascination with beautiful handmade items all her life and always had a yen to try making some herself, yet forever found herself putting it off. She got to the stage where she thought, if not now; when? And that’s how she […]

Celebrating Whitney Dafoe And His “Awakening” On His 37th Birthday

By Cort Johnson in Health Rising.   It’s Whitney Dafoe’s 37th birthday. He’s had chronic fatigue syndrome (ME/CFS) since 2004 and has been severely ill since about 2012. Fed by feeding tubes, eyes and ears covered, too weak to move, unable to speak or tolerate almost any stimuli. Whitney has hovered in a kind of […]

He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son

  By Ryan Prior, CNN.   (CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son’s bedroom for a subtle signal that it’s all right to come in. He opens the door to the space where Whitney has spent most of the last decade. Whitney lies motionless on […]

He Pioneered Technology That Fueled The Human Genome Project. Now His Greatest Challenge Is Curing His Own Son

    By Ryan Prior CNN.   (CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son’s bedroom for a subtle signal that it’s all right to come in. He opens the door to the space where Whitney has spent most of the last decade. Whitney lies motionless […]

The Puzzle Solver – A Researcher Changes Course To Help His Son

  By Tracie White in Stanford Medicine.   For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a prison. […]

Stanford: Scientist Searches For Answer To His Son’s Devastating Condition

  By Lisa M. Kreiger in The Mercury News.   As a renowned Stanford scientist, Ron Davis has a deep appreciation for the power of modern medicine. And yet an explanation for the disease afflicting his own beloved son eludes him. Son Whitney, 33, suffers from such severe Chronic Fatigue Syndrome that he is bedridden, unable to […]

The Puzzle Solver – A Researcher Changes Course To Help His Son

    By Tracie White in Stafford Medicine.   For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a […]

The Love Of A Thousand Muskoxen: Grieving A Love Lost To Time And Sickness

      Stephanie Land writes about her time with Whitney Dafoe, the severely ill son of Ron Davis, before he became ill with ME. She describes him as she knew him, and the urgency she feels as a writer to tell the story of the people with this disease whose suffering has been so […]

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