Our one to one carer support and advice is being provided over the telephone at the moment, please get in touch if you need us, we’re here to help. All our support groups and activities listed below are taking place online via zoom, and bookable by contacting our reception on enquiries@yorkcarerscentre or 01904 715490. If you’d like to take […]
Accessing carer groups from home You can now access our carer support groups and activities online as we continue to work within government guidance, and explore ways we can offer our face to face groups in the future. If you’d like to take part in any of our groups/activities, and would like help setting up […]
Welcome to the March 2020 news update for York Carers Centre. News Carers socials for 26 to 40 (ish) year olds We’re delighted to have received funding to offer socials for 26 to 40 year old carers in York. Our next one is at the Escape Room, Micklegate on Thursday 26 March early evening […]
The Carers Assessment of Need clinic for January listed in the newsletter and What’s On guide has had to change date due to venue. It will now be on Tuesday 22 January instead of 29 January. The time and venue remain the same, 10am to 12pm at York CVS.
Carers Rights Day Friday 30 November 2018 is Carers Rights Day; a national campaign to help carers know their rights and what help is available in their local community. This year we are pleased to be able to give carers the chance to meet and talk about their rights with York’s two MPs; […]
May Bank holiday We will not be open on Monday 7 or Monday 28 May. We will not be checking our answer machine or emails on these days. If you need urgent help when we are closed please contact the Emergency Duty Team on 01609 780780. Job opportunity We are recruiting for a Sessional Carer […]
Vacancies Over the next couple of weeks we will be advertising various job opportunities. Please keep an eye out on our website www.yorkcarerscentre.co.uk for details. Carers Action Group and Homecare Focus Group The next Carers Action Group (CAG) is on Tuesday 10 April, 10am to 12noon in the Penn Room at Friends Meeting House, […]
York Carers Centre news Vacancy – Office Manager We are seeking to recruit a highly organised and experienced Office Manager to join our friendly dedicated team to oversee the day to day running of our busy city centre office alongside taking an active role in the development of systems and procedures. The post-holder will […]
Christmas opening hours We will close at 5pm on Thursday 21 December 2017 and will reopen at 9am on Tuesday 2 January 2018. We will not be checking our answer machine or emails during this period. If you need urgent help when we are closed: Adults should contact City of York Council’s Customer Access […]
We very much look forward to greeting you at our AGM on Thursday 21 September 2017 at 6 pm, at York CVS, 15 Priory Street, York, YO1 6ET Please come along and share our successes and achievements over the last year and hear from our guest speakers Marilyn Crawshaw and Heidi Chan – presenting work […]
Hello, We are offering two stand alone bite-size Carer Awareness training sessions to professionals across the city, on Tuesday 3 October in the Rowntree Room at West Offices. You are welcome to attend either the morning or the afternoon session. Morning Session 9.15am to 12pm Afternoon Session 1 to 3.45pm This course […]
Welcome to the August 2017 email update from York Carers Centre. York Carers Centre Carer wellbeing programme York Carers Centre in partnership with York Mind, Converge, St Nicks, York LGBT Forum, Sunshine Changing Lanes and Kindlewoods have an exciting new opportunity to deliver a bespoke range of activities to support individuals’ mental health […]
York Carers Centre regular services Carers Café Our next Carers Café is Wednesday 5 July, 10 to 11.30am at the Spurriergate Centre, York. Please come along and enjoy a free drink and teacake and an opportunity to meet other carers. You can bring the person you care for if you wish and there’s no need […]
Carers Week is a national campaign to celebrate and recognise the UK’s 6.5 million carers who look after family or friends who are older, ill or have a disability. York Carers Centre are committed to helping the city’s estimated 18,000 carers within Carer Friendly Communities; places where local people and services understand a carer’s […]
Carers Café Our next Carers Café is Wednesday 7 June, 10 to 11.30am at the Spurriergate Centre, York. Please come along and enjoy a free drink and teacake and an opportunity to meet other carers. You can bring the person you care for if you wish and there’s no need to book. The Spurriergate Centre […]
Welcome to the February 2017 email update from York Carers Centre. Carers Café The first Carers Café of the year is on Wednesday 1 February, 10 to 11.30am at the Spurriergate Centre, York. Please come along and enjoy a free drink and teacake and an opportunity to meet other carers. You can bring […]
Join us this Friday 25 November, 9.30 to 11.30 am at Barclays Bank, Parliament Street, York for a special breakfast event for Carers Rights Day. Carers Rights Day is a national awareness day organised by charity Carers UK. The aim of the day is to reach out to the 6.5 million people in […]
York Carers Centre became an independent registered charity in 2009, after operating under the Yorkshire Primary Care Trust. A network member of the national Carers Trust, they work in partnership with carers, statutory and voluntary organisations to ensure carers, throughout York, have access to confidential information, advice and support. They work with carers to influence […]
As you will know, Hansard is an edited verbatim record of all matters discussed in Parliament and records all votes and written ministerial statements. You may be interested in when ME has been mentioned, and so a link to that record is below.
Carol Monaghan SNP spoke in Westminster Hall about the need for support and funds for ME Research. Many other MP's spoke passionately on the subject as it affects their constituents UK wide. Click on the link below to watch the full debate.
There has since been an All Party Parliamentary Group (APPG) formed to discuss the way ahead in helping MP's Constituents with ME. Contact your MP to ensure they're representing you !
To watch the video of Carol Monaghan MP addressing Parliament on M.E., click on the link below:
There are so many questions banded about as to the story of Myalgic Encephalomyelitis (ME), but this video gives a better and fuller insight than most. Once you've watched it, please copy the link and spread the word to raise awareness. Thank you.
To watch this video, click on the link below:
The York Access Group is a Facebook group which is aimed at improving Accessibility in York for those trying to get around with a Disability. Feedback on bad, and good Accessibility of shops, streets, cafes, restaurants and any other facilities are welcomed.
It's also the place to discuss mobility aids from walking sticks to scooters. If this sounds like a group for you, you're most welcome !
As we all know, especially those who need Wheelchairs or Mobility Scooters to get around, vehicles parking on pavements and blocking our way can have a major effect on our lives. It can mean that we are likely to put ourselves in danger by going onto busy roads because of inconsiderate parking. 
If you live in York, and you see a vehicle parked across a dropped kerb, call the council's hotline on 0800 138 1119 and the Civil Enforcement Officers will respond and are able to issue tickets. We know this won't help you right then and there, but the hope is that the more people report it, the more people get tickets, then slowly behaviour will start to change.
Would you like to help your local community ?
By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.
There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:
After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.
19 May 2017.
“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.
Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."
The York ME Community
@YorkMEAwareness
One of the major questions raised is the blending of ME with CFS. This chart on the Hummingbirds site illustrates the many differences between Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME).
Time For Unrest: Why Patients With ME Are Demanding Justice.
If you want the full story on ME and will read just one article about it this year, please make it this one,
Are you a member of a York based Sports or Fitness Club ? Looking for a local cause to run or do an activity for ? The York ME Community are looking to be 'adopted' by anyone willing to maybe run for us and help raise our profile. There are likely to be around 800-1,000 people of all ages in the York area with ME who would be so very grateful for your help.
We had a brilliant day at York Explore Library raising ME Awareness. Lots of interest in what we're doing from local health groups, charities, the council and most heart warmingly, from those dealing with ME themselves who now know we're here for them.
If you'd like to hear more about ME, get in touch.
As has been stated by Dr Sarah Jarvis and others, it’s possible that the Coronavirus could trigger M.E. in those people who get through the worst of the virus, and are seen to be in the recovery phase.
Please do not think that once you’re in that phase that you should just get back to your normal routine. As someone who has just passed his 14th anniversary with ME, the most important thing you can do is rest.
Resting should be from both physical and mental / cognitive activities.
Do not push beyond what your body is telling you. Your head might tell you something different, and you’ll be keen to make up for lost time, but please take advantage of this lockdown to recover properly. If you push beyond your limited energies now, and M.E. follows, it could change your life for years to come.
Be sensible and rest up. Take care.
Those within the ME Community have always known how damaging being prescribed Graded Exercise Therapy (GET) can be to their future health. We have a broken energy production system and therefore normal rules do not apply. The PACE Trial tried to show that it helps, but has been debunked by scientists and researchers worldwide. The PACE Trial in fact is now held up as an example of how NOT to conduct such trials.
To understand better the truth of GET and The PACE Trial, click on the link below to watch two short videos.
Dr Byron Hyde has dedicated his medical career to looking into M.E.
In this interview Dr. Byron Hyde, founder of the Nightingale Research Foundation in Ottawa, Canada, emphasizes the brain and enteroviruses. He also emphasizes his belief that Myalgic Encephalomyelitis and Chronic Fatigue Syndrome are separate issues.
To watch this interview on YouTube, click on the link below:
We are the ME/CFS Biomedical Partnership, a collaboration between researchers and people with ME/CFS, carers and the public.
The DecodeME DNA study aims to help us understand the disease and ultimately find treatments.
To read more, or get involved, click on the link below:
This is open to any organisation looking to have a bit of fun whilst supporting your local community. We're underway now for the current season but will be recruiting teams for our 6th season around July 2021. Although the aim is spreading ME Awareness, as a bonus we have also raised over £920.00 for Invest in ME Research, so why not join us ?
To join in for next season, click on the Fantasy Football League tab at the top of the site for all the information you'll need.
Written Question to the Department of Health and Social Care on 22 May 2018 by Carol Monaghan SNP, answered by Caroline Dinenage Minister of State (Department of Health and Social Care)
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
To read the ME Research Summary 2019 by ME Action covering the last ten years, click on the link below:
The York Inset Scooter Club is based in York (UK) and has a membership of around 250.
They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 supported The York ME Community.
They headed off from The York Eye (Clifford’s Tower) on Sun 28 Apr on a run out to the coast, set off by the Mayor of York and the York Normandy Veterans.
All money raised will be used to raise the profile of ME in York through posters being produced and put up in local business premises, clubs, schools, GP Surgeries and venues.
I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK. I will be aiming to keep up the pressure to ensure future support.
The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !
The City of York Council has followed through on their promise by lighting up the city walls and Clifford's Tower in blue over the ME Awareness Weeks since that meeting.
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The first Monday of each month at 11 am - The York ME Community Coffee Club at Bar Convent, 17 Blossom Street, York. There is parking available just around the corner at Nunnery Lane Car Park. Blue Badge holders can park for free.
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The third Wednesday of each month - at 2 pm - The York ME Community Coffee Club at The Novotel, York. Parking is free at the hotel.
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Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.
