The Challenge Of Maintaining Hope In The Dark Moments Of CFS/ME


Diana R


By Diana R. In The Mighty.


For me, one of the hardest parts of living with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is maintaining a hope that things will get better. I am convinced that if I am not careful, the despair I experience on my worst days will destroy me from the inside out. In my healthy moments, I intellectually understand the dark places, but in the midst of debilitating fatigue, there are no rational thoughts.

I understand that I have a blessed life. I know that even among those who have CFS/ME, I am one of the lucky ones. I am still able to work full-time and I spend more time out of bed than in bed. I understand that I have an amazing family and support system and that I am not alone in my fight. I understand that even suffering through fatigue and illness, I have a better life than many people in this world do. I understand that other illnesses and circumstances rob people of time with loved ones in unimaginable ways. Given that, it is even more difficult to explain that all of that intellectual understanding goes by the wayside when I am in the grips of fatigue.


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