The Hard Reality Of Living With Chronic Fatigue Syndrome

AFP6E1 Silhouette of a woman sitting by a window in a dim room and holding her head


By Rose Lewenstein in The Vice.


I can’t remember how old I was when I realized my mom had ME, a.k.a. myalgic encephalomyelitis, a.k.a. chronic fatigue syndrome. She was diagnosed when I was two, so I can’t compare the before and after. As a child, I didn’t really think about the fact that my brother and I were often looked after by child minders. Or the fact that she didn’t go out to work and spent a lot of time in bed. She managed, somehow, to make everything seem normal. When I was a teenager she would take me shopping like the other moms did, but an afternoon spent in a brightly lit shopping center might then mean days spent lying in a darkened room.


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Link to article in The Vice

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