The SMILE Trial And Its Not-So-Happy Aftermath – A Statement From Invest In ME Research

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From Invest in ME Research.

 

Invest in ME Research has never approved of the Lightning Process (LP) business and its model of operation where former ‘recovered’ patients pay a lot of money to become practitioners of this Trade Mark training programme.

We view this as a pyramid business – unregulated, unaccountable and unscientific.

Claims that it cures people with ME we find as risible hype.

Since 2010, we have made objections about the SMILE Trial [1] – an abhorrence in this age when we should be investing in biomedical research into ME in order to find causes for this disease.

Instead, funding is allocated to a commercial business enterprise to test it out on children.

It is shameful that any self-respecting researcher would participate in this.

It is disgraceful that any media outlet with any integrity would just take the press release of a media centre which is known for promoting a false view of ME and then avoid doing even the most basic of journalistic tasks – such as research of the information.

It is especially disgusting to witness the hypocrisy of some organisations who now complain about this training programme – yet all the while seem to be happy to sit in the same “big tent” along with the SMILE Trial PI, in a so-called collaborative organisation which continues to support this sea of research dross.

To read the rest of this story, click on the link below:

 

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