By David Tuller, DrPH.
This month is the start of the second half of my one-year crowdfunding commitment to keep reporting on ME/CFS, so I figured I should review what I’ve done so far, what I still hope to do, and what changes have taken place during the last six months. So, here goes.
From July 1st through December 31st, I posted here 25 times—an average of about once a week. The two most frequently covered themes were NICE’s decision-making process and the work and behavior of Professor Esther Crawley. In addition to those two topics, I also posted blogs about Professor Peter White, PACE, the U.S. Centers for Disease Control, and the U.K. ME/CFS biobank, among other issues.
Eight posts were about NICE and the current debate over updating the seriously deficient 2007 CFS/ME guidance. One of those posts involved documents obtained through a Freedom of Information request—the reports of the so-called “topic experts” consulted by NICE. The documents revealed that the agency sought a remarkably narrow range of opinions from “experts” who expressed solid support for the deeply flawed work of the CBT/GET ideological brigades. Hopefully NICE was appropriately embarrassed by the public disclosure of this anaemic effort to seek outside advice on its decision-making.
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