Posted by tipsforme.
This post is aimed mainly at people with ME but some elements are relevant to fibromyalgia and POTS.
Most people with ME (pwme) experience problems walking. The spectrum of this difficulty is wide, from people who don’t have the muscle power to get out of bed to people who appear averagely fit but who were previously athlete level (so feel limited). Symptoms associated with this may be weakness (legs are shaky or give way), pain (all over hot achiness, stiffness, pulling muscles easily, back pain being upright), heavy “concrete legs”, muscle spasms, and fatigue or reduced endurance.
For the last 3 years I haven’t been able to walk more than a few metres without my legs turning to concrete or giving way. Obviously this is highly disabling and I would like to get to some practical solutions. This post is an attempt to organise different approaches that may help, in line with the reasons researchers give for our problems walking. My focus is on the tips which could be inferred from the relevant research: this isn’t an attempt to give a full explanation of the muscle problems in ME.
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