By Anthea Rowan in The South China Morning Post.
Twenty million people suffer from myalgic encephalomyelitis, yet there is still no test for it, nor any approved treatment. We talk to a mother whose daughter has the illness, and who has consulted dozens of doctors in search of help.
Until my friend Caroline introduced me to myalgic encephalomyelitis, or ME, I didn’t know much about it. It was yuppie flu, a sort of tired opting out of life, I thought. And until she had to acquaint herself with the illness, Caroline didn’t know much about it, either.
“What I did know was vague; I had no understanding of it,” she recalls.
Three years ago, after contracting meningitis, her daughter, Saskia, just 20 at the time, succumbed to the illness. Since then Saskia has been mostly confined to bed and Caroline, as her primary carer, has had to try to understand an illness most doctors still know little about.
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