York TV Coverage Of York Inset Scooter Club Ride Out

30th April 2019

Charity, Disability, General Interest, Invisible / Chronic Illness, ME Support and Awareness in York - The York ME Community, ME/CFS Information, Myalgic Encephalomyelitis, Personal Stories, Social, York Stories of Interest

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Below is a link to the coverage by York TV of The York Inset Scooter Club Ride Out on behalf of The York ME Community.

I can’t say enough about how much this could change the lives of the many people in York with ME who are unaware of support in the area. The aim is to produce posters to be put up in business premises, clubs, venues, coffee shops and the like to raise Awareness of this illness.

Once again, a huge thank you to everyone who took part in this great event.

To see the York TV coverage, click on the link below:

Link to Ride Out Coverage

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If you have an ME related event you would like advertised here, just let me know.

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The first Monday of each month at 11 am - The York ME Community Coffee Club at Bar Convent, 17 Blossom Street, York.

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The third Wednesday of each month - at 2 pm - The York ME Community Coffee Club at The Novotel, York.

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Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.

Would you like to help your local community ?

By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.

There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:

Link to Business Request

The social element of this site is via a Facebook Group called The York ME Community.

This is available to people in the York area looking for help, advice and support, whether those diagnosed, family or friends. We are a close knit group who discuss more than just ME, as we like to think that we are not defined by this illness. We discuss every day things, have a laugh, and try to meet via our Coffee Club if the beast that is ME allows us ! If you apply to join, please check your Facebook messages, as there are a couple of automated questions to be answered before being welcomed to the group.

Please don't apply to join if you are promoting your preferred remedy. I'm happy to mention your company within the group, but it's for individuals to choose what they wish to try in their battle to seek an improvement in their health.

After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.

19 May 2017.

“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.

Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."

The Jen Brea ME film 'Unrest', about her story and struggle with Myalgic Encephalomyelitis (ME) was shown to a sellout audience at City Screen York on 1st November, prompting a second showing on 16 November. This film has won awards at The Sundance Film Festival and is a must see for all wishing and needing to know more about an illness affecting over 800 people in the York area alone.

Although still showing around the UK and worldwide, it's now also available on Amazon and iTunes and through the Unrest UK Store on DVD and Blu-Ray by clicking on this link: Unrest site to save having to undertake a journey to the cinema.,

Please spread the word through your GP, MP, Company HR Teams and any other people of influence you may know. Thank you.

Welcome to Broken Puppet Theatre Company.

We are a small team of creative professionals who live with chronic illness and invisible disabilities. We work with theatre, film and puppetry to support children, families, schools and communities who are learning to share their world with chronic illness and invisible disabilities too. Our aim is to provide creative expression and escapism wherever they are needed.

"Everything Broken has a Story..."

To visit the site, just click here

Upon request, North Yorkshire Fire & Rescue Service can carry out a home fire safety visit to your home, completely free of charge. This visit involves fire service staff coming to your home to give you advice on fire safety in the home, actions you can take to reduce the risk of fire, and discuss escape routes should fire occur.

If you don't aim to take up this offer, please at least check the batteries on your smoke alarms on a regular basis. If you want to read more, click on the link below:

Link to North Yorkshire Fire Brigade Site

Good luck to all Company teams as we get into the business end of the 2018/19 season !

Last season was a great success with 15 teams involved, and this season is going brilliantly with the aim of spreading ME Awareness. As a bonus, we have also raised £725.00 for Invest in ME Research.

Let's see if NG Plumbing and Heating can hold onto the trophy, having won the league for season 2017/18, although Bransby Wilson were top at Christmas and so received a box of goodies kindly donated by Nestle of York.

This is a call out to all York Businesses, Clubs and Venues to put it in your diaries for next season and support your local ME Community.

To join in for next season and help raise ME Awareness in your local area, have a look at the tab at the top of the site for more information.

Euan’s Guide is the disabled access review website used by disabled people to review, share and discover accessible places to visit. The charity was founded in 2013 by Euan MacDonald, who is a powerchair user, and his sister Kiki. As Euan’s access requirements changed, both went in search of recommendations for accessible places to go, but a platform for this kind of information didn’t exist. Built as a friendly and honest alternative to hours of web searching and phone calls before visiting somewhere new, Euan’s Guide now has thousands of disabled access reviews and listings for places all over the UK and beyond.

To go to Euan's Website, click on the link below:

Link to Euan's Guide

Our Coffee Club meets twice a month for a cuppa and a natter.

Dates and times will always be shown in our diary at the top left of this site.

The Coffee Club is open to anyone either with ME, or friends and family looking for support from people who understand.

Due to the nature of the illness, there will be times when numbers are low, but if you'd like to attend, either just turn up on the day, or email me at bill@York-ME-Community.org. If you're a member of our Facebook Group, you can of course say you'll be going via the notice in the Events area.

A TRUE STORY BY JESSICA TAYLOR-BEARMAN

Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage school girl. This true story follows her path as she ends up living in hospital for years with tubes keeping her alive.

This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called `Bug' that enables her to fulfil her dream of one day becoming an author.

It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight.

To order the book through Jessica's site, click on the link below:

Link to Jessica's site

This book is also now available at York Library

An album of original songs and poetry composed and performed by people with M.E. from all over the world, was released to mark and support ME Awareness Day, 12 May 2018.

It was hoped that by releasing this album, it will help those with ME to know that they are not alone, and for others to understand the nature of this illness and give what support they can.

Please consider downloading the album, or even a couple of tracks to help raise awareness of ME, and much needed funds for research into this illness that affects so many, but is understood by so few who may be in positions to help. Proceeds to ME Research and Education. All further information and questions, please direct via the website below: The album can be downloaded now from:

www.music4me.net

PLEASE SPREAD THE WORD !

I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK.

The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !

The City of York Council followed through on their promise by lighting up the city walls and Clifford's Tower in blue over ME Awareness Week.

Financial Year	£
2014-15	280,442
2015-16	295,626
2016-17	130,958

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If you have an ME related event you would like advertised here, just let me know.

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Interview With Dr David Tuller DrPH, of Berkeley University & Link to Blogs

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The York Inset Scooter Club Ride Out To Support The York ME Community

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Good luck to all Company teams as we get into the business end of the 2018/19 season !

Let's see if NG Plumbing and Heating can hold onto the trophy, having won the league for season 2017/18, although Bransby Wilson were top at Christmas and so received a box of goodies kindly donated by Nestle of York.

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