Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

Trial By Error: A Letter To BMJ Open

David Tuller

  By David Tuller, DrPH.   Three weeks ago, Professor Racaniello e-mailed a letter of concern to Archives of Disease in Childhood about its recent study of the Lightning Process as a treatment for ME/CFS in kids. The journal’s editor, Dr. Nick Brown, answered within an hour, assuring Professor Racaniello that he took the matter seriously and that the […]

The Fight That Follows Pain And Prejudice

Carol Head

  From MS Blog Magazine.   More than four decades ago, while a high school junior in Columbus, Indiana, I decided I wanted to run track. But I was told that girls were not allowed to compete in sports. Angry and confused—why can’t girls do sports?—I fought for and eventually won the right to start […]

Iconic Guitar Company Gibson Could Be Facing Bankruptcy

Gibson Guitars

  From Yorkshire Coast Radio.   Iconic guitar brand Gibson whose Les Paul and SG guitars have graced rock stages around the world could be facing bankruptcy, it has emerged. Founded in 1902 in Michigan, the company has seen stars including Slash, Bob Marley and Santana strumming some of their solid body electric guitars. The […]

ME/CFS: Thiamine Is Key; Coffee & Tea Inhibit It


  By Tracy Duvall.   As I’ve noted elsewhere, thiamine forms part of a suite of supplements that might counteract energy problems in ME/CFS. In any case, thiamine (or thiamin) is vital to energy production and other biological processes. A lot of people think that coffee or tea is vital to getting enough energy, too. For years […]

When Medicine Fails A Child


  By Caroline Christian in #MEAction.   I am lucky in that I did not realize the fallibility of medicine until I reached the age of 38. This is when I was diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a devastating neuroimmune disease wrongly believed by many doctors to be a psychiatric condition. Throughout the past decade of navigating […]

Cooking With A Physical Disability


  By Emily Han in @Kitchen.   For those with a permanent or temporary physical disability involving mobility impairment, cooking can present challenges as well as opportunities for creative problem solving. Not all disabilities or people are the same, but some of the common issues include limitations in standing, reaching, or using one side of […]

Every Interview For PIP Should Be Recorded, MPs Say In Damning Report


  By Jen Mills in METRO.   Confidence in the application process for the main disability benefit is so low that every interview should be recorded, MPs said in a damning report. They said there was a ‘pervasive lack of trust’ among disabled people who applied for PIP (Personal Independence Payment). Since 2013, 290,000 rejected claims […]

‘I Am A Hard Worker’


    By Terrence McCoy in The Washington Post.   Roanoke, Ala. — She wanted her clients to look to her for inspiration, so Teresa Boullemet stamped out her cigarette, popped a peppermint, sprayed herself with perfume and applied fresh lipstick. “Are you going to the farthest corners of the world today?” her assistant asked […]

NICE Announces Next Steps In Updating Its Guideline On ME/CFS


From www.nice.org.uk   A workshop last month with stakeholders marked the formal start of NICE’s collaborative work to update its 2010 guideline on the diagnosis and management of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The workshop was held so that stakeholders, including patient groups for people with ME/CFS and their carers, could help NICE identify at […]

Cortene II: A New Drug & A New Hypothesis For Chronic Fatigue Syndrome (ME/CFS)

HPA Axis

  By Cort Johnson in Health Rising.   Stress “Stress” is an unfortunate term. Usually we think of stress as emotional; in biology, though, stress means anythreat that disrupts the balance (or homeostasis) of the body. The stress response or HPA axis, prepares the body to respond to the threat. Any threat then, whether infectious, emotional, physical, chemical, […]

Robin, A Free Kiwi-Made Game About Chronic Fatigue Syndrome, Is Out Now


  By Matt Maguire in Game Planet.   A Kiwi game about chronic fatigue syndrome is available now on Steam for the princely sum of zero dollars and zero cents. Robin is described by developer Group Pug as a short slice of life game that was made to give some visibility to an invisible illness – “a quick, relatable […]

Boyzone To Play York Racecourse This Summer


  From YorkMix.   Chart-busters Boyzone are to play York this summer. The four surviving members of the multi-million selling band are the latest signings to the popular Music Showcase days at York Racecourse. It will mean a return to York for Shane Lynch who starred in the Barbican panto Robin Hood and the Babes In […]

Exercise Elevates Blood Signature Difference Between People With, Without Chronic Fatigue Syndrome


  By Bruce Goldman in SCOPE.   A bout of exercise is about the last thing you’d imagine a person with chronic fatigue syndrome – also known as myalgic encephalomyelitis and often designated by the acronym ME/CFS – would want to endure. And you’d probably be right. But a new study suggests that a blood test following exercise may be a […]

Mike Harley’s 28 EU Marathons For ME Awareness

Mike Barcelona

  My name is Mike Harley, I’m 35 and live in Bristol, UK and I’m running Malta Marathon as part of my challenge to run a marathon in every country in the EU (28 in total) to help raise money and awareness for biomedical research to find a cure for Myalgic Encephalomyelitis (M.E.) One of […]

Yorkshire Set For Another Fire-Cracking Chinese New Year

New Year

  From The Yorkshire Times.   Yorkshire is celebrating the Chinese New Year with news of a huge increase in the number of Chinese visitors to the county. Research by Visit Britain shows figures have more than doubled since 2012 when 9,000 Chinese people chose Yorkshire as a holiday destination, compared to almost 20,000 in […]

Prescribing Mindfulness Allows Doctors To Ignore Legitimate Female Pain


  By Sarah Yahm in SLATE.   A few years ago, after a series of cascading injuries and illnesses that rendered me unable to type, drive, or sleep, I briefly became a professional patient. Like all of my professions, I took it seriously. I went to appointments armed with lists of well-researched questions written down neatly […]

9 Shocking Errors Made In Assessments For PIP And ESA By Capita, Atos And Maximus

DWP Caxton House

  From Disabled Go News.   The Work and Pensions Select Committee received nearly 4,000 submissions – the most by a select committee inquiry – after calling for evidence on the assessments for personal independence payment (PIP) and Employment and Support Allowance (ESA). The MPs said: “We were so impressed and moved by the response […]

Worldwide ME Talent Search !


  Hi Everyone.  I’m on the lookout for anyone in the ME Community, anywhere in the world who would like to lend their talents to raising ME Awareness. We are working on putting together an album consisting of Music, Poetry Readings and the like, so are on the lookout for singers, writers and musicians to […]

ME Gets A Mention On BBC Radio Scotland – Listen Here…..


  From BBC Radio Scotland.   A piece on ME on BBC Radio Scotland on 14 Feb worth a listen.  It starts around the 36 minute mark.   Please let others know where to find it !   To listen in, click on the link below:   Link to ME Broadcast

Help From Your Pharmacy Team


  From NHS Choices.   Your local pharmacy is the place to go to get any prescription medicines and clinical advice for minor health concerns. But they do a lot more than that. As well as helping with common illnesses – like sore throats, coughs, colds, tummy troubles and aches and pains – pharmacy teams can also help […]

York Has The Most Congested Road In Yorkshire – With 1,000 Jams In A Single Year


  From YorkMix.   The next time you get stuck in a York traffic jam, console yourself with this fact. When it comes to road congestion, we lead the way. A new analysis by traffic data experts Inrix found that the junction with the worst congestion in Yorkshire was the Hopgrove Roundabout. The roundabout, which connects the […]

Why The Annual Winter Health Crisis Could Be Solved In Homes, Not Hospitals


  By Richard Morris in The Conversation.   As winter continues, so does the usual soul searching about the state of the UK’s National Health Service (NHS). Images of ambulances backing up outside emergency departments and patients lying on trolleys in corridors haunt politicians and the public alike. Demand on the NHS, which is always […]

Rituximab Trial And Research


  From Invest In ME Research.   Statement Following Preliminary Phase III Rituximab Clinical trial Results from Norway Following the preliminary results which Professor Olav Mella recently publicly released from the Phase III multi-centre double-blinded placebo-controlled Rituximab Clinical Trial (see statement 21st November 2017) the charity has had discussions with advisors and researchers and has now […]

Care And Support For Older People


If you’re looking for advice about how you can get care and support for yourself or someone else, our guides can provide the answers. If you need more help or your situation is urgent, call our Freephone Helpline on 0800 319 6789 to arrange to speak to an adviser. As you get older, your care and support […]

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