Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

A Consensus-Driven ME/CFS Clinician Coalition Takes Shape

Bateman Horne Center

    By Stephanie Griffin.   On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature […]

What It Means To Experience ‘Payback’ With Chronic Fatigue Syndrome


  By Zoe Bacon in The Mighty.   Post-exertional malaise, or “payback,” is one of the key diagnostic criteria for myalic encephalomyelitis/chronic fatigue syndrome (ME/CFS). It is also one of the symptoms that is hardest for people who haven’t experienced the condition to understand. I often think of it as being similar to a hangover, […]

Street Food, A Bar And Juggling Jesters – York’s Shakespeare Village Unveiled

Cliffords Tower

  From YorkMix.   With a little over 100 days to go before the first night, organisers of York’s pop-up Shakespeare theatre have revealed more details of what we can expect. And there will be plenty to do in addition to enjoying some of the world’s greatest plays in an authentic setting. As previously reported, […]

55 Reasons Why NICE Must Recommend A Home Visiting, Biomedical Service, For People With Severe Myalgic Encephalomyelitis


  By Stonebird. People with Severe and Very Severe ME are not safe within the current health system; this is not an exhaustive list by any means : 1. It is virtually impossible for the most severely affected to travel to a clinic or a hospital. 2. It is extremely difficult to find a knowledgeable […]

Six Yorkshire Postcodes Appear In Sunday Times Best Places To Live Guide For 2018


  From The Yorkshire Post.   A total of 10 towns and suburbs from the north-east of England appear in the national list of desirable locations, including six in Yorkshire. Two of them, Malton and Pateley Bridge, appeared in the 2017 guide, but there are also four newcomers. The north Leeds suburb of Chapel Allerton […]

One Side Effect Of Being Young, Female And Sick: People Won’t Believe You


  By Emma Court in Market Watch.   After Michele Lent Hirsch had major hip surgery in her early 20s, even as she hobbled around on crutches, people didn’t always believe that she’d had surgery. “Oh, my grandmother had that,” she’d hear. Or, “Weird, hip surgery.” An older woman yelled at her for taking a […]

How To Future-Proof The NHS – Copy The Bank Of England


    By Anne Marie Rafferty and Jonathan Grant in The Conversation.   Faced with an ageing population and funding pressures, fresh thinking is needed to brace the NHS for what lies ahead. Perhaps the answer to some of the impending problems in health policy can be solved with a relatively old idea adapted from the world of monetary […]

Scientific Study Reveals Severe Level Of Disability Caused By ME

Scientist using a microscope

  From Ekklesia.   A misunderstood disease wrongly labelled make-believe by some GPs is more devastating to sufferers than multiple sclerosis, a new scientific study has found. More than 250,000 people in the UK have ME (myalgic encephalomyelitis), which manifests as unrelenting fatigue and profound pain. The condition, also known as Chronic Fatigue Syndrome, has no […]

10 Guaranteed Ways To Cure Your Chronic Illness Instantly !

Miracle Cure

  By Bethany Freeman in The Mighty.   You might think chronic illness has no easy fix, that it’s a complex problem that often has no cure because it’s widely misunderstood and medically complex. You might think people who are chronically ill deserve nothing but love and understanding on their journey. Well, you’d be wrong. They just need to […]

Survey Of Young Europeans With Neurological Conditions


By the European Federation of Neurological Associations.   The Survey of Young Europeans with Neurological Conditions is a pan-European survey for people aged 18-35 affected by a neurological condition and living in Europe. The survey is being conducted by the European Federation of Neurological Associations [EFNA]. The objective of this survey is to gain an understanding of the biggest […]

Britons Spent £19m Replacing Lost Driving Licences Last Year

Driving Licence

  By Ted Welford in Motors.   British motorists spent nearly £19m replacing lost, damaged or stolen driving licences in 2017, according to new figures. In total, 931,527 replacement licences were applied for in 2017, with each replacement licence costing £20. The Driver and Vehicle Licencing Agency (DVLA) survey also found that young motorists are […]

Trial By Error: The Australian Situation, And Professor Crawley’s New Position

David Tuller

  By David Tuller, DrPH.   So I arrived in Melbourne on Wednesday afternoon. I’ll be in Australia for several weeks for meetings, interviews and general information-gathering. I’ll post occasionally, but some of the information might be for future blogs and stories. I’ve conducted a Q-and-A about the general situation in the country with Penelope […]

10 Of The Best Medieval Walled Cities – (York Gets A Mention !)

Clifford's Tower

  From CNN Travel.   For history buffs, photographers and anyone who’s ever said “Wow!” there’s nothing quite like the sight of a medieval walled city approached from a distance. Then there are the explorations within, tours of castles, walks along the walls and shops and restaurants in medieval squares. Many cities still have their […]

Functional Status And Well-Being In People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared With People With Multiple Sclerosis And Healthy Controls

Research Study

  By Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul and Eliana M. Lacerda  in Springer Link.   Background People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) continue to struggle to have their condition recognised as disabling in the face of public and professional prejudice and discrimination. Objective The aim of this study was to compare the functional status and well-being of people with […]

Why Choosing To Use A Wheelchair Was One Of The Best Things I’ve Done


  By Hay Green in The Mighty.   I know you might be thinking, “Did I read that correctly? Who would want to use a wheelchair?” Before you judge me, please read on. When I was 23 I was diagnosed with myalgic encephalomyelitis (ME). I had just been promoted at work, and the diagnosis of […]

Ex-OK ! Editor Lisa Byrne On Why She Swapped Celebsville For York


  By Maxine Gordon in The Press.   Organising the wedding of Liza Minnelli and David Gest in New York was one of the highlights of a glamorous career at OK! magazine for Lisa Byrne. Lisa, from Acomb, York, was editor-in-chief of the weekly celebrity glossy in its heyday, when circulation wars were rife between OK! […]

Much Can Be Done To Ease ‘Chronic Fatigue Syndrome’ Symptoms


    By Miriam E Tucker in Medscape.   SALT LAKE CITY, UT — The illness commonly known as chronic fatigue syndrome is complex and currently incurable, but clinicians can still do a great deal to manage symptoms and improve patients’ quality of life, experts agree. In a 2-day meeting held March 2 and 3, […]

Trial By Error: The Dutch Review; My Trip; Bristol’s Silence


  By David Tuller, DrPH.   And now some potentially good news from the Netherlands. Two years ago, the Dutch parliament asked the Health Council—an independent scientific advisory body—to review the state of evidence related to the illness generally called chronic fatigue syndrome in the Netherlands. That review was to include the evidence for rehabilitative […]

The Record Label Dedicated To Bringing York’s ‘Amazing Music Scene’ To The Wider World

Vinyl Records

  By Janina Engler in YorkMix.   Keeping creative talent out of the clutches of bigger cities like Leeds and inside the walls of York has always been a challenge. But a young York record label is determined to turn that around and invest in the flourishing scene already on its doorstep. Founded by Dave Greenbrown and […]

Victories For People Appealing For Disability Benefit Reach Their Highest Rate Ever


    From Disabled Go News.   The victory rate for people appealing for disability benefit has reached its highest ever. Personal Independence Payment (PIP) assessments have been branded a “total failure” as 69% of people appealing them at a tribunal now win their case. That is the highest percentage success rate ever recorded since […]

A Consensus-Driven ME/CFS Clinician Coalition Takes Shape

Bateman Horne Center

    By Stephanie Griffin in Bateman Horne Center.   On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for […]

Raising ME Awareness In York Through City Of York Council

York Council

You will be aware that I had a meeting with City of York Council on the subject of Raising ME Awareness.  I have received notification that the Lib Dem Group will be proposing a motion at the next full council to raise awareness of ME in York. There will also be a Press Release by […]

Does The Microbiome And Virome Contribute To Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ?


By Fiona Newberry, Shen-Yuan Hsieh, Tom Wileman, Simon R. Carding in Clinical Science. Abstract Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) (ME/CFS) is a disabling and debilitating disease of unknown aetiology. It is a heterogeneous disease characterized by various inflammatory, immune, viral, neurological and endocrine symptoms.   Several microbiome studies have described alterations in the bacterial component of the microbiome (dysbiosis) consistent with a possible […]

Fire Service Delayed By Software In Whitby Magpie Cafe Blaze

The Magpie

  From BBC News.   A failure of technology in a fire control room led to a seven-minute delay despatching an engine to a restaurant blaze. The Magpie Cafe in Whitby, North Yorkshire, suffered extensive damage in the fire on 1 May 2017. The restaurant’s owners believe it was 20 to 25 minutes before a […]

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