Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

Advisor Says 30 Local Claimants With Terminal Cancer Had PIP Rejections Overturned

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    By John Pring in Disability News Service.   A welfare rights advisor has described how at least 30 local benefit claimants with terminal cancer have had their claims rejected in the last year, with every one of the decisions later overturned by an appeal tribunal. In every case, the claimant has been terminally-ill […]

£3m Fund Will ‘Revolutionise’ UK Airport Security, Putting An End To Laptop Hassle

Airport

  By Katie Grant in iNews.   The Government will unveil on Friday a £3m fund to “revolutionise” airport screening so that passengers are no longer required to remove their laptops from their hand luggage during security checks. Companies and universities will be invited to bid for the money that is intended to support projects […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

CDC

    From the CDC (Centers for Disease Control and Prevention) Website.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness that affects many body systems. People with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have severe fatigue and […]

Mike’s EU Marathons – Amsterdam Report

Mike Amsterdam

    From Mike Harley’s EU Marathons Website.   Ahead of my trip to Amsterdam I’d made contact with a number of Dutch patient groups and associations who had all been very interested in supporting my challenge.  I interviewed M.E patients Anil and Frank along with campaigner and carer Rob, click here to read what they had […]

Flood Warning Service Improvements Go Live For Winter

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  From The Yorkshire Times.   People who live near the River Foss in York will now be able to benefit from an improved flood warning service from Wednesday, October 18. After the Boxing Day 2015 floods, one of the recommendations of the York Flood Inquiry report was for the Environment Agency to conduct a […]

Is It Just ME Or Is This A Real Disease ?

Lost

  By George Winter in The Medical Independent. George Winter examines the evolution of recognition for myalgic encephalomyelitis (ME). In 1926, TS Eliot, then editor of The Criterion, published Virginia Woolf’s essay On Being Ill, where she bemoans the “poverty of language” with which to describe illness: “Let a sufferer try to describe a pain in his […]

Trial By Error: Another Letter to NICE’s Sir Andrew Dillon

David Tuller

  By David Tuller.   First, for those who might have missed it, here’s a conversation from This Week in Virology (TWiV), posted a few days ago. Dr. Racaniello and I discuss the CDC, NICE, Esther Crawley’s ethically challenged behavior, the CMRC, and other stuff. Second, earlier today, I sent the following e-mail to Sir Andrew Dillon, […]

Why (ex)Hurricane Ophelia Took A Wrong Turn Towards Ireland And Britain – And Carried All That Dust

Hurricane

  By Alexander Roberts in The Conversation.   Hurricane Ophelia, by then downgraded to Storm Ophelia, reached Ireland on Monday October 16. At the time of writing there had already been three deaths and countless reports of severe damage to buildings and fallen trees. Unlike other severe storms to reach Ireland and Britain, such as […]

The Ambiguous Term “ME/CFS”: Why ME And CFS Cannot Be Combined

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    By Jerrold Spinhirne on his Facebook Page.   Increasingly, researchers, doctors, advocates, and patients are using the mixed term “ME/CFS” as if it had some clear, specific meaning and referred to some identifiable disease. In actuality, however, the mixed term “ME/CFS” is ambiguous, logically incoherent, and a major impediment for making progress in research […]

The York ME Community Links With Disability Employment Company evenbreak

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    The York ME Community has linked up with The Disability Employment Company evenbreak. This is a company run by disabled folk who believe that disabled people deserve an ‘even break’. Evenbreak, a not-for-profit social enterprise, was formed to achieve three aims: • To help inclusive employers attract more talented disabled people; • To […]

Can Positivity Cure Any Disease ?

Anil

    By Anil van der Zee, in his Capture, Dance, Words Blog.   As long as I have been suffering from my illness I’ve read and have also had some people tell me that the cause and course of my disease rests in some way in my own hands. I have always found that remark […]

Humans of ME/CFS

ME Drained

  By Laura O, in Solve ME/CFS Initiative.   I stared feeling run down and not quite myself nearly four years ago. I had all these strange things happen to my body. I just couldn’t get my head around it. The symptoms I had/have scared me and at times I actually thought, “I’m dying.” Who gets this […]

The York ME Community Coffee Club

ME Coffee Mornings

  Our Coffee Club meets on the third Wednesday of each month for a cuppa and a natter at The Novotel York. Our next get together is on Wednesday 18 October at 2 pm.  The Coffee Club is open to anyone either with ME, or friends and family looking for support from people who understand. Due […]

How Physical Therapists Are Getting It About Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in health Rising.   Immunologists aren’t interested. Neurologists, in general, are to be avoided. Endocrinologists can’t be bothered. Except for primary care physicians specializing in chronic fatigue syndrome (ME/CFS), the outlook in the medical field for ME/CFS patients is pretty bleak. If a chronic fatigue syndrome (ME/CFS) patient doesn’t encounter […]

My Life As ‘Little Miss Brain Fog’

Brain Fog

    By Jane Shaw in The Mighty.   Like its name, myalgic encephalomyelitis is also rather complicated and extraordinary. The illness made Little Miss Brain Fog feel like Little Miss Dotty, Little Miss Scatterbrain, Little Miss Fickle, Little Miss Whoops, Mr. Bump, Mr. Topsy Turvey, Mr. Forgetful, Mr. Lazy, Mr. Muddle, Mr. Dizzy, Mr. […]

Concerns over criteria for ‘fitness for work’ reassessment exemptions

DWP Caxton House

    By John Pring in Disability News Service.   Disabled campaigners have criticised new Department for Work and Pensions (DWP) rules that explain which benefit claimants will no longer have to be repeatedly put through the much-criticised “fitness for work” test. DWP announced last month, on the eve of the Conservative party conference in […]

Snow Machine For Shambles ! Street Raises Cash To Guarantee A White Christmas

Shambles

      From YorkMix.   Don’t bother looking up the long-range weather forecast. It will snow in Shambles this year.   York’s most picturesque street is set to enjoy a white Christmas, even if the rest of the city stays resolutely snow free. At least that’s the plan – as retailers launch a campaign […]

10 Indulgent Drinks For Chocolate Lovers To Try In Leeds

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  By Claire Schofield in iNews.   From indulgent hot chocolates to creative cocktails, these Leeds cafes and bars are serving up innovative chocolate-based drinks that will keep every chocoholic happy. Offering a special menu of 12 decadent hot chocolates, you can fend off those cold weather blues at the upmarket Dakota Deluxe Hotel. The […]

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