Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.
GET Paper Withdrawal Shocks CBT/GET Proponents – Emboldens ME/CFS Advocates
By Cort Johnson in Health Rising. Our mission is to promote evidence-informed health decision-making by producing high-quality, relevant, accessible systematic reviews and other synthesized research evidence. Our work is internationally recognized as the benchmark for high-quality information about the effectiveness of health care. Cochrane The Cochrane Reviews are the gold standard – highly respected and […]
DWP Ignores Concerns From Disabled People Who Shun Activity Over Benefit Fraud Fears
By John Pring in Disability News Service. The Department for Work and Pensions (DWP) has refused to offer a solution to disabled people who say they are fearful of taking more exercise in case they have their support cut or are branded benefit cheats. A new report by the disability sports organisation Activity […]
Mike’s EU Marathons For Invest In ME Research – Bulgaria Report
By Mike Harley. Just 5 weeks after Tallinn, I travelled to Sofia in Bulgaria to run their city marathon for number 19 of 28. With Cat 38 weeks pregnant I had expected to be going solo but one of my good mates, Mike Ward, volunteered to come with me. I tried hard to find a […]
Trapped In PIPVILLE: Scrap 20m Rule Says MS Society
by Katie Campbell in UNITE. People with multiple sclerosis spent yesterday huddled outside Westminster in protest of the cruel PIP 20 metre rule before delivering a petition for the rule to be scrapped for Secretary of State for Work and pensions Esther McVey. The protesters spent the day trapped in PIPville, a fictional representation of the […]
Stonebow Food Hall Plan Is Back – Aiming To Create A New ‘Social City Hub’ And 100 Jobs
From YorkMix. It caused such criticism that the developers pledged to go back to the drawing board. Today the controversial plan to turn part of Stonebow House in York into a food and dining hall has returned – aiming to turn an “eyesore” into a “social city hub”. And Try Market Halls say the […]
The Metabolic Trap Shines During The Symposium On The Molecular Basis Of ME/CFS At Stanford
By Cort Johnson in Health Rising. If we ask Nature a question and ask it well, Nature answers. Most of the time the answer refutes our hypothesis. This time, Nature didn’t refute the hypothesis. Robert Phair Ron Davis mentioned one of chronic fatigue syndrome’s aces in the hole several times – the chance to […]
Why People With Chronic Illness Can’t Simply ‘Push Through’
By Alicia Thompon in The Mighty. It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean to […]
Exclusive: Science Journal To Withdraw Chronic Fatigue Review Amid Patient Activist Complaints
By Kate Kelland in Reuters. LONDON, Oct 17 (Reuters) – A respected science journal is to withdraw a much-cited review of evidence on an illness known as chronic fatigue syndrome (CFS) amid fierce criticism and pressure from activists and patients. The decision, described by the scientists involved as “disproportionate and poorly justified”, is being […]
Save Money On Downsizing
From SAGA Magazine. Thinking of moving somewhere smaller? You could save thousands of pounds with these handy tips – read on to find out how… Downsizing is popular among the over 50s who have decided to live in a smaller, cheaper and more manageable property. As we revealed in a recent article the cost of […]
Trial By Error: The Psychosomatic Conference’s Pathetic Response
By David Tuller. By David Tuller, DrPH After I posted yesterday’s blog about Per Fink’s upcoming appearance at the fourth annual Columbia Psychosomatic Conference being held this weekend, I received the following e-mail from Columbia’s Alla Landa. She is an assistant professor of “clinical psychology in psychiatry”–whatever that means–and director of the conference. I found […]
The Health Benefits Of Fermented Food
By Patsy Westcott in SAGA Magazine. Fermentation is one of the hottest food trends right now – but why all the fuss about this ancient method of food preservation? Fermented foods have been part of our diet ever since our ancient ancestors cottoned on to the idea that fermentation helped to preserve food. With the […]
Trial By Error: Per Fink In New York
By David Tuller, DrPH. Someone uninformed or stupid or maybe both decided to invite Danish physician Per Fink to present at a conference on so-called psychosomatic medicine being held this weekend at Columbia University. Fink—I won’t dignify him by using an honorific–is a scary guy. He should never have been provided with this […]
Universal Credit Roll-Out Delayed – Again
By Katie Campbell in UNITE. Leaked documents seen by the BBC have shown that the government will once again delay the rollout of Universal Credit, with Esther McVey saying that a “small amount of people – maybe 10,000” will be moved onto the system in 2019. Despite the government’s plans to have Universal Credit fully up-and-running […]
10 Ways To Boost Your Vitamin D Levels
By Daniel Coughlin in SAGA Magazine. Unless you’re escaping to sunnier climes for the winter, chances are your vitamin D levels will need topping up. here are 10 ways to boost reserves. Our bodies convert sunlight to vitamin D but from October to March, the sun in the UK doesn’t contain enough UVB radiation […]
‘I’m 33 And Have Been Living In Aged Care For Eight Years’
By Ketra Wooding in The Age. I’m 33 and I live in a dementia ward, which is exactly as bad as you imagine. But I’m not here because I have dementia. I’m here because it is the quietest (except when the residents are yelling), least perfume-saturated ward. I need my environment to be quiet and chemical […]
The Differences Between Temporary And Chronic Pain
By Krista Germanis in The Mighty. Pain and sickness are really difficult things to write about. Trying to describe things you’re feeling, but many people have never dealt with before, is essentially attempting to put pen to paper about the way butterflies feel in the beginning of a relationship to someone who still has yet […]
Immunosignature Analysis Of ME/CFS
By O. P. Günther et al. in ProHealth.com. A random-sequence peptide microarray can interrogate serum antibodies in a broad, unbiased fashion to generate disease-specific immunosignatures. This approach has been applied to cancer detection, diagnosis of infections, and interrogation of vaccine response. We hypothesized that there is an immunosignature specific to ME/CFS and that […]
Viking Great Hall To Be Built In York Car Park – Staging Daily Live Shows
From YorkMix. Is there a more entertaining car park in Britain? First Castle Car Park hosted Shakespeare’s Rose Theatre, bringing in thousands of theatregoers keen to see the plays in a 16th century style setting. Now the same venue is set to take us further back in time, as the location for a […]
Watchdogs’ Concern Over Government Refusal To Act On UN Rights Reports
By John Pring in Disability News Service. Four equality and human rights watchdogs have heavily criticised the government for its failure to address the serious concerns raised in a “damning” UN report on the rights of disabled people across the UK. A year on from the report by the UN’s committee on the rights […]
So When A High-Profile Civil Servant Is Disabled, The Press Finds Its Sympathy
By Frances Ryan in The Guardian. Andrew McDonald’s case deserves attention of course, but most disabled people get a different reception when the benefits system casts them aside. I want to tell you about two very different disabled people, both going through Britain’s benefit system. “Disabled person 1” has Parkinson’s disease and terminal […]
Esther McVey: Disabled People Will Get “Significantly More” On Universal Credit
by Katie Campbell in UNITE. Esther McVey has told the BBC that one million disabled people will get “significantly more on Universal Credit,” despite previous evidence showing that disabled people face losing out on up to £4,000 every year under the new system. Speaking to the BBC yesterday, McVey admitted that the Tories have made some “tough […]
Stormed It ! York Company Wins Space Award
From YorkMix. York based self storage and service station operator, Inner Space Stations, has been named the ‘UK Best Independent Facility of the Year’ at a prestigious award ceremony. The honour came at an awards night hosted by the Self Storage Association earlier this month. Inner Space Stations Self Storage opened only a year […]
Blairgowrie Holiday Park: The Perfect Wheelchair Accessible Caravan Holiday
·By @SIMPLYEMMA2. If you’re looking for an affordable caravan holiday in the beautiful Perthshire area of Scotland, then I know just the place for you. If you want a comfortable and accessible base with peaceful surroundings but close to restaurants, shops and things to do then Blairgowrie Holiday Park could be the perfect wheelchair accessible caravan holiday […]
Living Deeply In Tiny Rooms
By Zeraph Dylan Moore in #MEAction. Here is a question for you: Is your life small or large? How do you know? Is it possible to have a big life in a single, small room? Or to lead a small life that is lived in many places? Questions like these have become more pertinent to […]
Hello, Is It ME You’re Looking For ?
Edit Hello, Is It ME You’re Looking For ? I’m sure you know the feeling I’m sure you know the score Hit with ME, you soon get to see How things are not as before I hoped my friends would stay with me I seriously thought they would I thought that they’d […]
Army Major Hopes To Become Fastest Disabled Woman To Powerboat Around Isle Of Wight
By Amy Wiltshire in Forces Network. Major Mandy Islam is calling for better support for service personnel with life-changing conditions. A British army major with a rare type of blood cancer hopes to become the fastest disabled woman to drive a powerboat around the Isle of Wight. Three years ago Major Mandy Islam was diagnosed with […]
Almost Impossible To Get A Fair Pip Assessment
From The Guardian. Ann Moore says the ‘health professionals’ often have little or no expertise in the medical condition or disability being assessed. Plus letters from Rev Paul Nicolson of Taxpayers Against Poverty, and from disabled war pensioner Mo Stewart. I fully empathise and sympathise with the article about Andrew McDonald (Top former civil servant lambasts ‘hostile’ disability […]
Trial By Error: My Latest Letter To Archives Of Disease In Childhood
By David Tuller, DrPH I sent the following e-mail today to Dr Nick Brown, the editor-in-chief of Archives of Disease in Childhood, the journal that published the Lightning Process study a year ago. I cc’d Dr Fiona Godlee, editorial director of BMJ, which publishes Archives. ********** Dear Dr Brown— As you know, I have […]
A Novel Study From Jax ME/CFS Center On A Human T Cell Subset Involved In Sensing The Microbiome
From JaxMECFS website. Jackson Labs ME/CFS Collaborative Center Director Derya Unutmaz and his collaborator and microbiome expert Julia Oh recently published a study in the journal Mucosal Immunology, titled “Tuning of human MAIT cell activation by commensal bacteria species and MR1-dependent T-cell presentation.” Mucosal-associated invariant T (MAIT) cells are a type of T cell present in […]
The Never-Ending Challenge Of Dealing With Post-Exertional Malaise (PEM)
From the Not Just Tired blog. After a good day, or a spell of feeling pretty ok, it’s always a kick in the teeth when Post-Exertional Malaise (PEM) catches up with you. As I’m sure those of you living with ME/CFS, will be all too familiar with. For those not familiar, PEM is […]
Invest In ME Resarch International Conference Week London 2019
Invest in ME Research has announced dates for events taking place in London for their International Conference Week in May 2019 on biomedical research into ME (Myalgic Encephalomyelitis). The second Thinking the Future conference for young or early career researchers will be on 28th May 2019. The ninth Biomedical Research into ME Colloquium (BRMEC9) […]
Why My Chronic Fatigue Is Like A Cell Phone Battery
By Christen Marie in The Mighty. For those of us dealing with chronic pain or chronic illness such as fibromyalgia, autoimmune disorders, or any host of other physical or mental health issues, there is often this one overriding issue that can wreak havoc on our lives and yet be very difficult to explain to the average person. Chronic fatigue. Chronic […]
Video: Hey Presto ! Shambles Harry Potter Shop Doubles In Size
It’s as if they’ve waved a magic wand. But the sudden doubling in size of the original Shambles Harry Potter shop actually took a lot of planning and hard work. The Shop That Must Not Be Named opened on the ancient street in May 2017. The brainchild of Adam Rodway, who also owns Fossgate gift […]
Chronic Fatigue Syndrome: Everything You Need To Know
By Dr Nick Knight in GQ. For years this debilitating disorder was viewed with scepticism and doubt, but the GQ Doctor and most medical professionals now agree it is a real and serious condition. Dear GQ Doc, Is chronic fatigue syndrome the same as ME? David, via email. For years, chronic fatigue syndrome […]
Time For Unrest: Why Patients With ME Are Demanding Justice.
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