Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

What A Place To Stay ! Rooms In Rowntree Park Lodge Could Become Holiday Homes

Rowntree Park Lodge

  From YorkMix.   There’s room at the top at Rowntree Park Lodge – and plans are afoot to turn the space into holiday homes. The upper floors of the lodge have become vacant and City of York Council plans to spend £150,000 refurbishing them before they are let out to holidaymakers. This would bring […]

Disability Benefit Claimants Not Being Paid Enough To Live On, Campaigners Warn

DWP Caxton House

  By The Press Association, published by MailOnline.   Some 60% of people claiming the main long-term sickness benefit believe the amount of money they get is not enough to live on, according to a major new survey. Labour called the findings from Employment and Support Allowance (ESA) claimants “a damning indictment of the Government’s […]

How Disabled People Care For Each Other When Doctors Can’t


  By David M Perry in Pacific Standard.   In her new film Unrest, Jennifer Brea offers a groundbreaking look at the power of community where medicine falls short. When Jennifer Brea was 28 years old, she got sick and spiked a fever of 104.7 degrees. The fever went down, but soon she found herself […]

This New Documentary On Chronic Fatigue Syndrome Is A Must-See—And Not For The Reason You Think


  By JE BANACH in Vogue.   Most of us only watch Netflix in bed. Jennifer Brea self-directed a documentary, now streaming on the service, from hers, offering up a stunning glimpse of life with myalgic encephalomyelitis, the mysterious illness better known as ME, or chronic fatigue syndrome. Brea was a Ph.D. student at Harvard University and a soon-to-be bride […]

Guest Post: Being A Mummy With ME


  From Scope.   I’m Alison, I’m in my (very late!) 30s and I have a debilitating chronic illness called M.E (myalgic encephalomyelitis). I am a mummy to an almost 9 year old beautiful little girl and I write a blog about it at www.beingamummywithme.blogspot.co.uk I used to live a completely “normal” life. I had a […]

What Is Open Banking ?


  By Holly Thomas in SAGA Magazine.   Open banking was introduced on 13 January this year – find out more about what it is, and how it could help you save money. Open banking was introduced this month for current accounts – but what exactly is it? Put simply, it will allow companies to access current […]

NIH Striving To Avoid False Hope In Chronic Fatigue

Scientist using a microscope

  By Joyce Frieden, in, MedPage Today   BETHESDA, Md. — The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today. “Five years ago … there was this big […]

How I Remain An Incurable Optimist, Even With Chronic Illness


  By Lisa Alioto in The Mighty.   I am an incurably optimistic person. That is who I am, my heart, my soul and how I eat, live and breathe. Sometimes though, life even gets to the best of us optimists and that’s OK. Sometimes you have to give yourself permission to simply absorb reality in its […]

Reflecting On Dr. King And The Disability Rights Movement

Martin Luther King

  By Regina Weiss in Independence Care System.   In thinking about Dr. Martin Luther King as his birthday approaches, I was looking into connections between the civil rights movement that he helped to lead for racial equality and the disability rights movement. I’ve always been interested in the intersection of groups of people who are discriminated […]

Call For ‘Scores On The Doors’ Disability Access Ratings

Disabled Access

  From BBC News.   A “scores on the doors” system should be introduced to rate disabled access for surgeries, shops and restaurants, campaigners have said. About 2,000 people have signed a petition calling for premises to be rated 0-5, in a similar scheme to the food hygiene rating. Simon Green, who uses a wheelchair, […]

Trial By Error: My Six-Month Review

David Tuller

  By David Tuller, DrPH.   This month is the start of the second half of my one-year crowdfunding commitment to keep reporting on ME/CFS, so I figured I should review what I’ve done so far, what I still hope to do, and what changes have taken place during the last six months. So, here […]

A Letter To Professor Mark Baker – Centre For Guidelines Director, National Institute For Health And Care Excellence


  From Invest in ME Research.   In July 2017 Invest in ME Research responded to the NICE 10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis. Recently, whilst preparing for the planned Stakeholders’ Workshop (16 January 2018) to review the NICE guidelines for ME it has, in our opinion, been necessary to make one […]

Is Your Health Being Destroyed By Other People’s Toxic Fragrances ?


  by John P. Thomas in Health Impact News.   Secondhand fragrance contamination should be the number one health problem being addressed by the public health system in America, but it doesn’t even show up on the list of current priorities. Some people love the smell of chemical fragrances, but 30.5% of the general population find the smell […]

Café-Bar, Micro-Brewery And Distillery Planned For Micklegate


  From YorkMix.   Three years after they helped the rejuvenation of Fossgate, a brother and sister team have revealed ambitious plans that could help accelerate Micklegate’s revival. Sarah and Michael Lakin launched the Fossgate Social in October 2013. Their new plan is to transform an imposing property at the top of Micklegate into a […]

‘Blue Monday’ Is A Hoax – But It Could Become The Most Depressing Day Of The Year If You Don’t Watch Out


  By Jolanta Burke in The Conversation.   Over the past decade, hordes of innocent people have bought the idea that the third Monday of January is the most depressing day of the year – despite there being no scientific evidence to support it. While retailers, beauty salons, travel agents and many other commercial bodies have capitalised […]

Fast Food Makes The Immune System More Aggressive In The Long Term


  By Prof. Dr. Eicke Latz and Dr. Anette Christ from University of Bonn.   The immune system reacts similarly to a high fat and high calorie diet as to a bacterial infection. This is shown by a recent study led by the University of Bonn. Particularly disturbing: Unhealthy food seems to make the body’s defenses […]

To Those Who Find My Illness ‘Hard To Understand’ When They See Me Smiling


    By Tiffany Early in The Conversation.   My husband and I had a conversation about how others perceive my illness the other day. It wasn’t a confrontational conversation — it was more the random musings that happen when you’re waiting for dinner to come out of the oven. Joe mentioned that a mutual friend had once […]

From International Traveler To 43 Square Meters: An ME/CFS Story From Sweden


  By Anne Ortegren in Health Rising (2014).   (Anne’s is a difficult story but it’s a good story in a way because it demonstrates the full force  of this illness. Anne’s story is reminiscent  of Jenn Brea, Jamison Hill and Mary Dimmock’s son’s stories. Each was a young adult with not just a good but perhaps an extraordinary life […]

Revealed: £50 Million Masterplan For National Railway Museum

Railway Museum

  From YorkMix.   The National Railway Museum is set for its biggest upgrade since it opened in 1975. Plans to completely overhaul the Leeman Road site have been unveiled. The museum has drawn up a £50 million, seven-year masterplan, designed to increase visitor numbers from 750,000 today to 1.2 million. It will see the […]

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