Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

15 Things People With Chronic Illness Mean When They Say ‘I Don’t Feel Good’

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  By Veronica Vivona in The Mighty.   Many of those with chronic illness may be used to saying they’re “good” or “fine” when it comes to how they’re feeling. It doesn’t always mean they’re actually good or fine though. It might just be what they’re portraying to the world. They may do this for a variety of […]

Extra Costs With A Disability

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  From Scope.   Life costs more for disabled people and their families. Spending more on essential goods and services like; heating, insurance, equipment and therapies. These extra costs mean disabled people have less money in their pocket than non-disabled people, or simply go without. Therefore, disabled people are likely to have a lower standard […]

Video: York Spitfire Pilot To Get A Hero’s Funeral 74 Years After Being Shot Down Near Venice

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  From YorkMix.   A York war hero who was killed when his Spitfire was shot down over Italy is to finally be laid to rest 74 years later – after archaeologists discovered his body. John Henry Coates, 24, took off in one of six RAF Spitfires from 111 Squadron from Rimini Airfield on March […]

Hull Mum: ‘Horror Illness Has Left My Body Feeling Like An 80-Year-Old’s – But No-One Believed Me’

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  By Anna Riley in Hull Live. A Hull mum has spoken of her battle with a health condition people believed she did not have. Nicola Meekin, 39, from Hull, became ill nine years ago when she started suffering from a bad chest infection. But instead of getting better, her sickness worsened. To Mrs Meekin, it felt like […]

Experimental Blood Test Accurately Spots Fibromyalgia

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  By Misti Crane in Ohio Stae News.   For the first time, researchers have evidence that fibromyalgia can be reliably detected in blood samples – work they hope will pave the way for a simple, fast diagnosis. In a study that appears in the Journal of Biological Chemistry, researchers from The Ohio State University report success […]

Big Gods Came After The Rise Of Civilisations, Not Before, Finds Study Using Huge Historical Database

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    By Harvey  Whitehouse et al in The Conversation.   When you think of religion, you probably think of a god who rewards the good and punishes the wicked. But the idea of morally concerned gods is by no means universal. Social scientists have long known that small-scale traditional societies – the kind missionaries used to […]

Why ME, Or Yuppie Flu, Is Like Aids Was Once – Misunderstood Or Dismissed As Not Real, And Ignored By Most Doctors

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By Anthea Rowan  in The South China Morning Post.   Twenty million people suffer from myalgic encephalomyelitis, yet there is still no test for it, nor any approved treatment. We talk to a mother whose daughter has the illness, and who has consulted dozens of doctors in search of help. Until my friend Caroline introduced me […]

Which Painkiller ?

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  From NHS Choices.   The type of medicines that you need to treat your pain depend on what type of pain you have. For pain associated with inflammation, such as back pain or headaches, paracetamol and anti-inflammatory painkillers work best. If the pain is caused by sensitive or damaged nerves, as is the case with shingles or sciatica, it’s usually treated with tablets that […]

New Park & Ride Bus Service Will Go Directly To York Hospital

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  By George Dodd in The Press.   A NEW Park&Ride bus service travelling directly to York Hospital is to launch next month. The service, which starts on April 29, will run every 20 minutes from Rawcliffe Bar Park&Ride to the hospital. It will be run in partnership with First York and has been made possible by funding from York Teaching […]

The Brainstem, Vagus Nerve, Neuroinflammation And Chronic Fatigue Syndrome: The VanElzakker Way

Vagus Nerve

  By Cort Johnson in Simmaron Research.   In 2013, Michael VanElzakker produced one of the most intriguing hypotheses to date in ME/CFS. His Vagus Nerve Hypothesis proposed that an infection/inflammation near the vagus nerve was causing it to send an unending stream of messages to the brain, telling it to essentially shut the body […]

Children With Chronic Fatigue Syndrome Often Wait More Than A Year For Diagnosis

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  by Sasha Nimmo Researchers at the Murdoch Children’s Research Institute in Melbourne confirmed that paediatric chronic fatigue syndrome (Fukuda criteria) causes significant disability and little is known about how common the condition is or how it is currently managed in Australia. More than half of children have to wait a year or longer before […]

ME Isn’t Just ‘Exercise Phobia’: it’s A Physical Illness

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By Tanya Marlow in The Spectator.   Imagine you’re diagnosed with epilepsy: what would you think if you weren’t referred to a specialist but taken to a psychiatrist to treat you for your ‘false illness beliefs’? This is what happens to Myalgic Encephalomyelitis (ME) patients in the UK. They are told to ignore their symptoms, […]

Shoppers To Lose York HMV ‘By The End Of The Month’

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    By Dan Bean in The Press.   SHOPPERS in York are set to lose another high street favourite, with the closure of HMV. The Coney Street store was at risk just weeks ago, after HMV went into administration, but 1,500 jobs around the country were saved when Canadian retailer Sunrise Records bought 100 […]

The Myth Of “It’s All In Your Head”

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  By Abby Pickus in DEPAUL Magazine.  In 1980, a high school English teacher from Wisconsin named Pat Fero went on a trip to England. Healthy and in her 30s, she noticed something was very wrong toward the end of the trip. “We were in this beautiful countryside, and we went to climb a hill […]

Why Is Music So Hard For People With ME/CFS ?

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  By Jody Smith in Pheonix Rising. Oh, how I love music! This magic can lift our spirits and calm our weary minds. Maybe it can even help us heal. Goodness knows, we who live with ME/CFS need these things. We’re probably not getting much of this elsewhere. So if music is so good for […]

Millions Missing

Millions Missing

  Millions Missing Tommy missing from the five a sides A different postman today Jenny not out, not seen her about Maybe she’s just gone away No Mary at the Bingo Charlie, where is that guy? Rang the teacher, couldn’t reach her Didn’t wonder why Jack from the pub Hayley down at the club That […]

How Nature And My Dog Changed My Outlook On Illness

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    By Jack Croxall in Allies Everywhere.   Growing up in rural England I was obsessed with the outdoors. Bug hunting, fossil collecting, and pond dipping were what I spent most of my time doing. But, during my time at university (living in the city of Nottingham and then in London), there wasn’t as […]

Who Reviews ME/CFS Applications For NIH ?

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    By Jennie Spotila in Occupy  M.E.   There is no question that NIH’s funding of ME/CFS research has been minuscule relative to the size of the public health crisis. Review of ME/CFS grant applications at NIH has drawn scrutiny from the public as one contributing factor. The public perception is that the grant review panelists […]

Mike Harley’s Marathons For ME

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  Good luck to Mike Harley who is running 28 Marathons across Europe to raise Awareness and funds for Invest In ME Research.   On Sunday the 17th of March he will be running the Cyprus Marathon.   As always, a huge thanks from everyone in The York ME Community  Mike ! See the tab […]

Beauty In The Dark

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  From Anil van der Zee in Capture. Dance. Words.   For years I’d dreamed of backpacking through Europe, of seeing the Eiffel Tower and the Mona Lisa and the Roman Colosseum. This summer at the age of 28 I finally got to achieve that. But in the shadow of the monuments, many of the […]

There Is Something Right In The State Of Denmark

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        From Invest In ME Research.   Following excellent work by European ME Alliance-Denmark member Dansk ME Foreningen, and work and input by those such as European ME Clinicians Council member Dr Jesper Mehlsen, there is now unified support in the Danish parliament for separating ME G93.3 from Functional Disorders and acknowledgment […]

Why Retired Dame Berwick Will Write Sleeping Beauty Panto For Theatre Royal

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By Charles  Hutchinson in The Press.   Berwick Kaler may have exited pantomime stage left in February, but the grand old dame of York Theatre Royal is taking up the call to write the script for Sleeping Beauty this coming winter. “When I said on the last night, ‘if they ask me, I’ll be back […]

SEID Is Killing ME

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  From ME Advocacy.   Advocating in the United States for the disease myalgic encephalomyelitis (ME) has reached a new challenge that threatens the very core of the recognition for the disease. While some advocacy organizations have diverged and taken the alarming path of partnering with the US Health and Human Services (HHS) in adopting, […]

Why People With Chronic Illness Can’t Simply ‘Push Through’

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  By Alicia Thompson in The Mighty.   It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean […]

Chronic Fatigue Syndrome, ME/CFS

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    From Cornell Research.     A million or more people in the United States suffer from myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), but remarkably little is known about the cause of the disease, and effective therapies are lacking. ME/CFS is characterized by debilitating fatigue that is not relieved by […]

What Is ME ?

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  From #MEAction.   Myalgic Encephalomyelitis (ME), commonly known as Chronic Fatigue Syndrome (CFS) or ME/CFS, is a devastating multi-system disease that causes dysfunction of the neurological, immune, endocrine and energy metabolism systems. It often follows an infection and leaves 75% of those affected unable to work and 25% homebound are bedridden. An estimated 15-30 million […]

Epstein-Barr Virus Induced Gene-2 Upregulation Identifies A Particular Subtype Of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

Research Study

      By Jonathan R. Kelly in Frontiers in Pediatrics.   Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a chronic multisystem disease characterized by a variety of symptoms, and exhibits various features of an autoimmune-like disease. Subtypes are well recognized but to date are difficult to identify objectively. The disease may be triggered by infection […]

Life Of Pippa, Spoonie Survival Kits…..And So Much More !

Pippa

  Hi Everyone. ‘My name is Pippa, and I’m a chronically ill writer and blogger at Life Of Pippa. I’m originally from Sheffield, but moved to York for university and have been here ever since! I’ve had ME/CFS since I was a teenager, but was only diagnosed in 2014, following a relapse at the age of […]

Denmark: MP’s Will Vote Whether To Recognise ME As WHO-Defined Disease !

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    From #MEAction.   This past Tuesday, March 12, Danish Health MPs unanimously agreed on a declaration that will recognise myalgic encephalomyelitis (ME) as a distinct disease, remove it from the “functional somatic syndromes” category, and promote the World Health Organization (WHO) diagnostic codes for ME. Parliament will vote on the declaration this Thursday, […]

NIH Brings In New Faces And Looks To The Future In Accelerating ME/CFS Research Conference

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  By Cort Johnson in Health Rising.   Conferences are exciting because they’re virtually the only place one can go to learn about breaking research.  The NIH ME/CFS conference, with its bevy of new faces that’s taking place on the NIH campus itself on April 4th and 5th, certainly fulfills that need. Many of the heavy […]

When Doctors Brush You Off Because They Don’t Know How To Treat You

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  By Saidee Wynn in The Mighty.   In the TV show “Golden Girls,” a two-part episode titled “Sick and Tired” depicts the character of Dorothy, played by Bea Arthur, approaching a doctor while out at a restaurant. This doctor had earlier dismissed her symptoms as being all in her head and sent her on […]

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