Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.
Malayan Tiger In Crisis
By Kae Kawanishi in malasiakini. Saving the tiger will ensure that future generations continue benefiting from a healthy ecosystem. The extinction of the charismatic top predator, however, is just one indication of humans’ misplaced priorities and short-sightedness destroying our only home. The Malayan tiger (Panthera tigris jacksoni) is about to go extinct in the wild. Because […]
Disabled Peer Calls For ‘Heavy Fines’ For Air Travel Access Failures
By John Pring in Disability News Service. A disabled crossbench peer has called on the government to start handing out “heavy fines” to the air travel industry when it fails to ensure that its services are accessible to disabled passengers. Baroness [Jane] Campbell asked the government on Monday what action it was taking to encourage all UK […]
Those Pop-Up ‘I Agree’ Boxes Aren’t Just Annoying – They’re Potentially Dangerous
By Sabrina Rau in The Conversation. Have you noticed the increasing number of pop-ups asking you to consent or “agree” when you visit a website? Do you find these annoying and tend to just click accept without reading the policies? So do most people, and here’s why that’s a problem. By “agreeing” to any of […]
Accurate Diagnosis Of Myalgic Encephalomyelitis And Chronic Fatigue Syndrome Based Upon Objective Test Methods For Characteristic Symptoms
By Frank NM Twisk in World Journal of Methodology. Abstract Although myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are considered to be synonymous, the definitional criteria for ME and CFS define two distinct, partially overlapping, clinical entities. ME, whether defined by the original criteria or by the recently proposed criteria, is not equivalent […]
UN Day Of Disabled People: Government Could Face Court Over Universal Credit
By John Pring in Disability News Service. The government could be forced into court to defend its failure to make the much-criticised universal credit benefit system accessible to disabled people. A parliamentary meeting held to mark the International Day of Persons with Disabilities (IDPD) on Monday – and to call for universal credit […]
Nationwide Joins Purple Light Up Movement To Recognise Contribution Of Disabled Employees
By Sid Hayns-Worthington in the Swindon Advertiser. The society’s Employee Disability Network organised sessions at the HQ to have open conversations about obsessive compulsive disorder, dementia, understanding anxiety and stress, and also included a mental health resilience workshop. The company held around 35 events across the country, coinciding with International Day of Persons with Disabilities […]
Motability Charity Boss To Go After Extra Bonus Revealed
From BBC News. The boss of Motability Operations is to step down by 2020 following criticism over his pay and a scathing review from the government’s spending watchdog. The report from the National Audit Office revealed Mike Betts was in line for an extra £1.86m bonus on top of already “generous” pay. The […]
Shining A Light On Chronic Fatigue Syndrome, A Little Understood Disease Among Doctors
By Jennie Spotila, in the Inquirer. I recently went to a new doctor. He looked over my chart: “Chronic fatigue syndrome,” he read, and then he glanced up at me. “You don’t look tired,” he quipped. “There, I made it go away.” I’ve been sick for 24 years, and I get comments like […]
More People Are Experiencing Severe Food Allergies Than Ever Before
By Mattew Smith in The Conversation. The recent inquest into the death of Natasha Ednan-Laperouse from anaphylaxis after eating a Pret A Manger baguette she was unaware contained sesame, could lead to a change in labelling legislation. Indeed, a recent investigation found that undeclared allergens were present in a quarter of foods sampled. But a more fundamental issue […]
Could Poor Microcirculation Be Causing Chronic Fatigue Syndrome (ME/CFS) ?
By Cort Johnson in Health Rising. Could the microvascular system – the small capillaries and the red blood cells that run through them – hold the key to energy problems in chronic fatigue syndrome (ME/CFS) and perhaps fibromyalgia? The idea that the blood delivery system – not some metabolic derangement per se – is […]
‘Invisible’ Disabilities Campaign Calls On Community To ‘Think Outside The Chair’
By Laura Collins and Lucy Robinson in ABCNews Australia. Living in an Australian society that understands and accepts all forms of disability is no longer a pipedream for New South Wales woman Marni Walkerden. Ms Walkerden is the brains behind the Think Outside the Chair campaign, which is launching in the NSW central […]
‘Unparalleled’ Iron Age Warrior Grave Uncovered Near Pocklington
By Megi Rychlikova in The Press. For seven months, experts worked in secret to excavate two barrows near the East Yorkshire town. Each was constructed more than 2,000 years ago. Inside one was the only Iron Age chariot with standing horses found in Britain and the body of a warrior in his late 40s […]
Tips For Newbies With Fibromyalgia And/Or Chronic Fatigue Syndrome (ME/CFS)
By Cort Johnson in Health Rising. Having any disease is scary, but having chronic fatigue syndrome (ME/CFS) and/or fibromyalgia (FM) often adds a hefty dose of confusion and bewilderment to that fear. Not only are people with ME/CFS and FM typically exhausted and in pain, but problems with short-term memory and information processing […]
The UK ME/CFS Biobank: A Disease-Specific Biobank For Advancing Clinical Research Into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
By Eliana M. Lacerda et al in Frontiers in Neurology. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling disease characterized by unexplained incapacitating fatigue, accompanied by variable multi-systemic symptoms. ME/CFS causes a significant personal and public health burden, and urgently requires the coordination of research efforts to investigate its etiology and pathophysiology and to develop […]
ME.rry Christmas !
Well the decorations are up, so it must be getting near to Christmas ! Maybe time to push this one out….I’m sure you’ll know the tune……. ME.rry Christmas ! On the first day of illness My ME gave to me A shrug from my local GP On the second day of illness My […]
Trial By Error: Some Good News On Cochrane
By David Tuller, DrPH. In what can only be characterized as a welcome surprise, Cochrane has rejected the revision of a 2014 review of exercise treatments for chronic fatigue syndrome, stating that the work does not meet the organization’s “quality standards.” Cochrane revealed the decision late Friday in a statement appended to the review, which itself […]
The Ultimate Beginner’s Guide To Astronomy
From Hobby Help. If you’re keen to get into Astronomy, you’re participating in one of the oldest human traditions. Depictions of the cosmos range back far into human history, and almost certainly into pre-history. People from the Greeks to the Chinese to the Mayans looked up at the night sky and derived forms of […]
Why Using A Contactless Card Might Be Costing You More Money
By Tamsin Kelly, Commercial Writer in Huffpost. It’s 11 years since contactless cards were first launched back in 2007. At the time, they were a niche product only available from one card issuer in a handful of London postcodes. Today contactless has dramatically changed the way we spend money with the majority of […]
If Someone With Chronic Illness Says They’re Tired, Please Think Before Responding, ‘Me Too’
By Kaisha Holloway in The Mighty. When being “tired” is more than just feeling tired… Don’t you just hate it when people try to get one up on you, by always striving to be worse off than yourself? Don’t you just hate it when people assume that tiredness is the same for […]
Do Graded Activity Therapies Cause Harm In Chronic Fatigue Syndrome ?
By Tom Kindlon in Journal of Health Psychology. Abstract Reporting of harms was much better in the PACE (Pacing, graded Activity, and Cognitive behavioural therapy: a randomised Evaluation) trial than earlier chronic fatigue syndrome trials of graded exercise therapy and cognitive behavioural therapy. However, some issues remain. The trial’s poor results on objective measures […]
Australia’s Health Minister Listening To People With ME
From ME Australia. by Sasha Nimmo Australia’s Health Minister, Greg Hunt, listened to people with Myalgic Encephalomyelitis (ME), families, scientists and organisations. Minister Hunt had a second meeting with ME Australia, along with Prof Paul Fisher, head of microbiology at La Trobe University and Dr Heidi Nicholl, Emerge Australia on Thursday. ME Australia […]
This Life With Gracie: What Is Chronic Fatigue Syndrome ?
By Gracie Bonds Staples, The Atlanta Journal-Constitution. Chronic fatigue syndrome. For more than two decades, those three words have consumed Liz Burlingame because, well, words mean something. They convey feelings and connote action. They can comfort or cause pain. They can be our best friend or our worst enemy, failing us completely. That’s how Burlingame […]
More Than A Million Homes Will Be Cut Off From The New Fully Switchable Smart Meters
By Sam Meadows in The Telegraph. More than a million households may be unable to benefit from the new breed of fully switchable smart meters, it has emerged. The £11bn smart meter roll-out, promoted by celebrities including Kirstie Allsopp has seen more than 12 million installed, but has been dogged by issues of meters “going […]
Study Shows Red Blood Cells Less Deformable In ME Patients – Possible Biomarker
Written by Ronald W. Davis, PhD in ME Action. This paper documents that red blood cells are less deformable in ME/CFS patients compared to healthy controls. It potentially could be a biomarker, and we are proceeding to design new devices that will make a clear distinction between patients and healthy controls. These devices will be […]
DWP Admits Failing To Keep Track Of Disability Discrimination Claims By Its Own Staff
By John Pring in Disability News Service. The government department responsible for running the Disability Confident employment scheme has admitted failing to keep track of how many complaints of disability discrimination are made by its own staff. The Department for Work and Pensions (DWP) repeatedly brags about its much-criticised scheme, which aims to help employers recruit […]
15 Signs That People Needed To Take Time Off For Their Health
By Julia Metraux in The Mighty. If you have a chronic illness, you know that managing your symptoms can feel like a full-time job. There’s a chance that you also have different responsibilities in your life besides managing your symptoms, like work, school, or taking care of your family. But what happens when you need […]
York Ice Trail To Return !
Great news. The York Ice Trail will be back from 2 February 2019 ! This terrific event can only come about due to the skill and wonderful imagination of the team at Glacial Art Ice Sculptures. Below is a short lead in to their Blog where you can learn more about what they’re all […]
Overwhelming Public Support For Sugar And Calorie Reduction
From The Yorkshire Times. A new survey from Public Health England (PHE) shows overwhelming public support for reducing sugar and calories in everyday foods. The survey, carried out by Ipsos MORI, found around 9 in 10 people support the government working with the food industry (manufacturers, supermarkets and the eating out of home sector) to […]
Pinetree’s Chronic Fatigue Syndrome / M.E. CBD Oil Success Story
From Health Rising. (Thanks to Pinetree for providing her success story and personal recommendations. This blog was written by her and edited by me (Cort)) A success story is always a remarkable thing to hear. Pinetree still has chronic fatigue syndrome (ME/CFS), she’s not ‘normal’ or cured, but a single treatment has made a remarkable […]
“The Abnormal Cardiac Index And Stroke Volume Index Changes During A Normal Tilt Table Test In ME/CFS Patients Compared To Healthy Volunteers, Are Not Related To Deconditioning”
By C.(Linda) M.C. van Campen, Frans C. Visser* et al of the Department of Cardiology,Stichting Cardiozorg, Planetenweg, Netherlands. Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a chronic, and often disabling disease. The disease is multi-systemic, and is characterized amongst others by chronic fatigue/exhaustion, exercise intolerance, memory and concentration disorders, headache, multi-joint and muscle pain, unrefreshing sleep and […]
The Isolation I Feel as I Parent Kids With Disabilities
By Laura McLean in The Mighty. Raising children with disabilities can be challenging and rewarding, often within the same day — or even hour. Our emotions as parents are complicated. We can simultaneously feel like giving up and also be ready to go to the ends of the earth for our children. We […]
The York ME Community – York Inter Company Fantasy Football League For The York ME TGA Shield
The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,000 people in the UK, and 800 in the York area alone. Of those around York, 200 are likely to be severe, meaning house or bed bound. On […]
‘I Was In Denial And Ashamed By My CFS’
By Simon Del Favero in SBS Insight. When Simon realised that treatment options in Australia for his chronic fatigue syndrome were limited he looked overseas for answers. I was diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in early 2011 after a severe bout of glandular fever. In the years prior to my diagnosis I was studying […]
Why You Shouldn’t Take Antibiotics For Colds And Flu
By Carol Kelly in The Conversation. Winter is well and truly on its way. For many, this conjures up images of log fires, mistletoe and festive feasts. But it can also mean cold, damp mornings, short hours of daylight and the dreaded cold and flu season. Tickly throats, headaches, fevers and generally feeling rotten […]
Time For Unrest: Why Patients With ME Are Demanding Justice.
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