Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

Study Identifies Constellation Of Metabolites Linked To ME/CFS


  From News Medical Life Sciences.   A study led by researchers at the Center for Infection and Immunity (CII) at Columbia University’s Mailman School of Public Health has identified a constellation of metabolites related to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Combining this data with data from an earlier microbiome study, the researchers now report […]

‘Potentially Harmful And Old-Fashioned’ Chronic Fatigue Treatments Under Review


  By Andy Park in ABC News Australia.   Treatment recommended to Chronic Fatigue Syndrome (CFS) patients can be potentially harmful and is old-fashioned, according to a patient group who are asking a new government advisory committee to research potential cures, not counselling or exercise relief. The predominant treatment for many of Australia’s 200,000 sufferers […]

The Cortene Chronic Fatigue Syndrome (ME/CFS) Drug Trial Begins


  By Cort Johnson in Health Rising.   Since February, Health Rising has described the development of a new drug produced for chronic fatigue syndrome (ME/CFS) by a small pharmaceutical company named Cortene in three blogs: The Cortene Way: New Drug to Be Trialed in Chronic Fatigue Syndrome (ME/CFS) Soon – Pt. I Cortene II: A New […]

Disabled Blue Badge ‘Misuse’ Magistrate Margot Conyers Dismissed


  From BBC News.   A magistrate has been told to step down by judicial chiefs after “misusing” a disability parking badge. Margot Conyers, who heard cases in North and West Yorkshire, was investigated after a complaint to the Judicial Conduct Investigations Office (JCIO). The JCIO said Miss Conyers’ actions were found to be “incompatible […]

MPs Raise Concerns With McVey Over ‘Stress And Poverty’ Caused By WRAG Cuts


  By John Pring in Disability News Service. Cross-party MPs have raised a series of concerns with work and pensions secretary Esther McVey about the government’s treatment of disabled people on out-of-work benefits. Members of the Commons work and pensions select committee were questioning McVey (pictured) more than a year after her government introduced cuts of nearly […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome


    From CDC Centres for Disease Control and Prevention.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness that affects many body systems. People with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have severe fatigue and sleep problems. […]

The “X” factors Of ME.


  By Anil van der Zee in CAPTURE. DANCE. WORDS.   Since the publication of the Dutch Health Council we’ve had numerous articles in the media about Cognitive Behavioral Therapy/Graded Exercise Therapy (CBT/GET), the body and mind connection along with the psychological (and social) factors. I’ve already responded to an opinion piece by Knoop et al about […]

Trial By Error: My Letter To Parliament’s Science And Technology Committee

David Tuller

  11 JULY 2018 By David Tuller, DrPH Earlier today, I e-mailed the following letter to the members of the House of Commons Science and Technology Committee, which has been investigating issues of scientific and research integrity. I thought it would be a good idea to make sure they knew that this quality appeared to […]

Award-Winning Garden Finds New Home In Yorkshire


  From The Yorkshire Times.   After wowing judges and visitors at the recent RHS Chatsworth Flower Show, the ‘Hay Time in the Dales’ garden is set to impress again, this time on home turf. Designed and built by Chris Myers to raise awareness of the work of local charity Yorkshire Dales Millennium Trust (YDMT), […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): CDC Releases Updated Website


  From Outbreak News Today.   The Centers for Disease Control and Prevention (CDC) today released an updated website for healthcare providers about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The new site is designed specifically with clinicians in mind and offers information about how physicians can better assess and help their patients manage the illness. CDC’s new ME/CFS web […]

Mother Of Epileptic Boy Becomes First Person To Legally Enter UK With Cannabis Oil


  By Benjamin Butterworth in INews.   The mother of a six-year-old epileptic boy has legally brought medicinal cannabis oil through the border in the first known successful attempt since the Government paved the way for reforms. Hannah Deacon was allowed to pass through London City Airport on Tuesday carrying a five-month supply of the […]

A Mediterranean Diet Could Be The Secret To Better Bones, A Study Reveals

Primary Prevention of Cardiovascular Disease with a Mediterranean Diet with Walnuts.  (PRNewsFoto/California Walnut Commission)

  By Sally Guyoncourt in INews.   Eating a Mediterranean diet could reduce the effects of osteoporosis in the elderly, say scientists. It has long been known the Mediterranean diet, rich in fruit, vegetables, nuts, unrefined cereals, olive oil, and fish, has health benefits for both your heart and waistline. Now a new study, published […]

CBT & GET – Parliamentary Question


  From ME Research UK.   The Countess of Mar, Chair of the Forward-ME Group and Patron of ME Research UK has raised a number of points with the Department of Health and Social Care concerning how those affected by ME/CFS can report adverse effects experienced due to participation in Graded Exercise Therapy and/or Cognative […]

Trial By Error: Yet Another Appeal To The Lancet, With More On Board

David Tuller

  By David Tuller, DrPH.   Last month, Professor Racaniello sent Lancet editor Richard Horton an open letter about the PACE trial signed by 94 scientists, clinicians, academics and other experts. The letter, a follow-up from one sent in 2016, cited the study’s “unacceptable methodological lapses” and called for a fully independent investigation. Since Dr Horton has not […]

Beds, Lanterns And A Tipi Bar – Dean’s Park Looks Very Different This Summer !


From YorkMix.   York Minster’s back garden has never looked like this before. Part of Dean’s Park has been converted into an outdoor chill zone, complete with cushion-bedecked platforms, lanterns and a tipi bar. These are now in place for the first Heart Of Yorkshire Festival, organised by York Minster. The event runs throughout the […]

Double Truth: Medieval story Reveals How You Can Believe Two Conflicting Positions At Once


  By Ann Giletti in The Conversation.   Identity can compel you to reject the truth – even when you have evidence proving it. We see this today with the US political establishment: Trump supporters can look at two photos of his inauguration and say the largely empty Mall is full. This problem is far from […]

New Harvard Chronic Fatigue Syndrome (ME/CFS) Research Center Fulfills Crucial Need


    By Cort Johnson in Health Rising.   In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million –  to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic fatigue syndrome (ME/CFS) research centers are now found at two […]

A Morass Of MUS


From the Spoonseeker.com Blog.   As you are probably aware, here in the UK, NICE are currently engaged in the lengthy process of revising their guidelines for ME/CFS. The current guidelines recommend the use of GET (graded exercise therapy) and associated CBT (cognitive behavioural therapy), the latter being used in this case to persuade patients that GET is […]

Australia Needs Lasting Consensus On NDIS Funding


  From Probono Australia.   People with disability, their families, carers and advocates deserve the certainty of a National Disability Insurance Scheme which is sustainable, writes Bruce Bonyhady. Australia urgently needs a lasting consensus on the funding of the NDIS which builds trust in the disability sector, confidence in the Australian community and sustainability of […]

The Illness People Can’t See: Living With Chronic Fatigue Syndrome


    By Hannah Gibson in The Spinoff.   What is it like to have a disease that nobody can ‘see’ and which society can shame you for talking about? To mark International ME/CFS Awareness Day, Hannah Gibson writes about her experience with ME/CFS, and the struggle to have her condition legitimised in Western medicine. […]

Creators Of Famous Viking Centre In York To Open New Exhibit In Tayside

York Viking Centre

  From the Evening Telegraph. Vikings: Fearsome Craftsmen explores the day-to-day lives of the formidable Norse warriors and the interactive event will introduce visitors to the Viking way of life, including their craft skills. Those who attend the exhibition, which is being run by the creators of the famous Jorvik Viking Centre in York, can […]

Charities Fail To Tell MPs About Clauses That ‘Prevent Them Attacking McVey And DWP’


    By John Pring in Disability News Service.   Representatives of disability charities have given evidence to MPs about the impact of government social security reforms on disabled people, without disclosing that they signed contracts preventing them from attacking work and pensions secretary Esther McVey. Senior figures from Shaw Trust and the Disability Benefits […]

15 Helpful Comments That Actually Hurt People With Chronic Illness


  By Erin Migdol in The Mighty.   Once people discover you are dealing with health challenges, it often leads them to offer you some advice or comment about your condition. However, your chronic illness may be different than the types of illness they’re used to dealing with — like the common cold or a flu — […]

Castle Museum Owners In Talks Over The Future Of Clifford’s Tower

Clifford's Tower

By Victoria Prest in YorkMix.   York Museums Trust is in talks with English Heritage about the future of Clifford’s Tower and the Castle area. The news comes as City of York Council prepares to back out of a Clifford’s Tower land deal. The trust, which runs the Castle Museum, is talking to Clifford’s Tower […]

The World’s Best Crisps Have Been Revealed And Walkers Salt And Vinegar Isn’t Even In The Top 10


      By Thomas Tamblyn in HUFF POST.   The world’s best crisps have been voted for by the public and incredibly Walkers Salt and Vinegar haven’t even made it into the top 10. This national travesty comes courtesy of website Ranker, which lets the general public vote for their favourite things in the form […]

Is York Really In The SOUTH ? That’s What An Academic Says – For One Rood Reason


  From YorkMix.   It’s enough to make you rush out and buy a dozen flat caps and three hundredweight of whippets. One academic has suggested that York isn’t in the north at all. Instead it is as southern as that there softie London. The idea, suggested by Mark Tewdwr-Jones from Newcastle University, might make […]

‘We Don’t Exist Under These Plans’ – Cycle Business Could Go Under Station Revamp


  From YorkMix.   A radical plan to revamp York station could railroad a cycle shop out of existence. Cycle Heaven has a branch in the former parcel office at the station, but a new vision for the area shows the building disappearing to make way for a new taxi rank. Owner Andy Shrimpton said […]

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