Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

York GP Surgery Goes Into Special Measures After Being Rated ‘Inadequate’

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    From YorkMix.   A York GP group has been put into special measures over failings including long waiting times for patients. Unity Health, which has surgeries at Kimberlow Hill and Wenlock Terrace, has been rated ‘inadequate’ by inspection body the Care Quality Commission. A CQC report said that Unity was not meeting national […]

ME And My List

To Do List

ME AND MY LIST   The eyes they slowly open A restless night behind Sleep didn’t want to come my way To rest my buzzing mind   I gently rise to find my feet Hope the strength is there to greet My legs like stilts, …..no feeling I fall,…… to stare up at the ceiling […]

Doctors ‘Do More Harm Than Good’ Sending ME Patients To Gym

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  By Lisa Smyth in The Belfast Telegraph.   A charity that supports people with Myalgic Encephalomyelitis (ME) has said patients in Northern Ireland are being failed by a shocking lack of understanding about the condition. People with ME can suffer a range of symptoms, from headaches and extreme sensitivity to light and sound, to […]

Flu Vaccine Effectiveness In 2017 To 2018 Season

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  From The Yorkshire Times.   Public Health England (PHE) has published data on the effectiveness of the flu vaccine in the 2017 to 2018 season. The data show that overall, flu vaccine was 15% effective in all age groups. However, effectiveness varied considerably. By age-group, the vaccine was overall: 26.9% effective in children aged […]

The Medical Community Is Changing Its Mind On Chronic Fatigue Syndrome. Why Aren’t Insurers ?

Brian Vastag

  By Steven Lubet and David Tuller in STAT News   Brian Vastag was enjoying a life that many people would envy. At age 41, he had achieved professional success as an award-winning health and science reporter for the Washington Post, covering important stories from around the world. That came to an end in July 2012, when he […]

Powerchairs Aren’t Just For Elderly People

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From The Life of Pippa Blog.   If you’re new to my blog, hello and a warm welcome! I’m Pippa, I’m 23, and I have a rather inconvenient chronic illness: you can find out more about me here. I’ve used a transit wheelchair for the last three years as my mobility has decreased, and I recently […]

Tanyalee Davis: Disabled Comedian ‘Amazed’ By Support

Tanyalee Davis

From BBC News.   A comedian who criticised a train firm after she was “humiliated” for using a disabled space for her mobility scooter has thanked the public for their support. Tanyalee Davis, who lives in Norwich, said a Great Western Railway (GWR) service guard threatened to call the police if she did not leave […]

York Inter Company Fantasy Football League For The York ME TGA Shield 2018/19

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The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 in the York area alone. Companies enjoyed a great 2017/18 season with NG Plumbing and Heating coming out on top and winning […]

Emerge Australia Welcomes $370,000 In Federal Funding

Australia

  From Mirage News.   Emerge Australia, the national organisation providing support, information and advocacy for people with Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), has received $370,000 in Federal funding to support its work. It is the largest Federal funding that has been committed to a support organisation working in the ME/CFS space. CEO […]

Emperor CDC’s New Clothes

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  By Gabby Klein in Relating To ME.   The much-anticipated revision of CDC’s website on ‘ME/CFS’ section “Information for Healthcare Providers” was unveiled July 12, 2018.  The main reason for the revision was to adopt and educate medical professionals to diagnose people using the government-sponsored clinical IOM/SEID criteria and to update the toolkit based […]

Study Identifies Constellation Of Metabolites Linked To ME/CFS

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  From News Medical Life Sciences.   A study led by researchers at the Center for Infection and Immunity (CII) at Columbia University’s Mailman School of Public Health has identified a constellation of metabolites related to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Combining this data with data from an earlier microbiome study, the researchers now report […]

‘Potentially Harmful And Old-Fashioned’ Chronic Fatigue Treatments Under Review

Australia

  By Andy Park in ABC News Australia.   Treatment recommended to Chronic Fatigue Syndrome (CFS) patients can be potentially harmful and is old-fashioned, according to a patient group who are asking a new government advisory committee to research potential cures, not counselling or exercise relief. The predominant treatment for many of Australia’s 200,000 sufferers […]

The Cortene Chronic Fatigue Syndrome (ME/CFS) Drug Trial Begins

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  By Cort Johnson in Health Rising.   Since February, Health Rising has described the development of a new drug produced for chronic fatigue syndrome (ME/CFS) by a small pharmaceutical company named Cortene in three blogs: The Cortene Way: New Drug to Be Trialed in Chronic Fatigue Syndrome (ME/CFS) Soon – Pt. I Cortene II: A New […]

Disabled Blue Badge ‘Misuse’ Magistrate Margot Conyers Dismissed

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  From BBC News.   A magistrate has been told to step down by judicial chiefs after “misusing” a disability parking badge. Margot Conyers, who heard cases in North and West Yorkshire, was investigated after a complaint to the Judicial Conduct Investigations Office (JCIO). The JCIO said Miss Conyers’ actions were found to be “incompatible […]

MPs Raise Concerns With McVey Over ‘Stress And Poverty’ Caused By WRAG Cuts

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  By John Pring in Disability News Service. Cross-party MPs have raised a series of concerns with work and pensions secretary Esther McVey about the government’s treatment of disabled people on out-of-work benefits. Members of the Commons work and pensions select committee were questioning McVey (pictured) more than a year after her government introduced cuts of nearly […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

CDC

    From CDC Centres for Disease Control and Prevention.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness that affects many body systems. People with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have severe fatigue and sleep problems. […]

The “X” factors Of ME.

Anil

  By Anil van der Zee in CAPTURE. DANCE. WORDS.   Since the publication of the Dutch Health Council we’ve had numerous articles in the media about Cognitive Behavioral Therapy/Graded Exercise Therapy (CBT/GET), the body and mind connection along with the psychological (and social) factors. I’ve already responded to an opinion piece by Knoop et al about […]

Trial By Error: My Letter To Parliament’s Science And Technology Committee

David Tuller

  11 JULY 2018 By David Tuller, DrPH Earlier today, I e-mailed the following letter to the members of the House of Commons Science and Technology Committee, which has been investigating issues of scientific and research integrity. I thought it would be a good idea to make sure they knew that this quality appeared to […]

Award-Winning Garden Finds New Home In Yorkshire

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  From The Yorkshire Times.   After wowing judges and visitors at the recent RHS Chatsworth Flower Show, the ‘Hay Time in the Dales’ garden is set to impress again, this time on home turf. Designed and built by Chris Myers to raise awareness of the work of local charity Yorkshire Dales Millennium Trust (YDMT), […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): CDC Releases Updated Website

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  From Outbreak News Today.   The Centers for Disease Control and Prevention (CDC) today released an updated website for healthcare providers about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The new site is designed specifically with clinicians in mind and offers information about how physicians can better assess and help their patients manage the illness. CDC’s new ME/CFS web […]

Mother Of Epileptic Boy Becomes First Person To Legally Enter UK With Cannabis Oil

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  By Benjamin Butterworth in INews.   The mother of a six-year-old epileptic boy has legally brought medicinal cannabis oil through the border in the first known successful attempt since the Government paved the way for reforms. Hannah Deacon was allowed to pass through London City Airport on Tuesday carrying a five-month supply of the […]

A Mediterranean Diet Could Be The Secret To Better Bones, A Study Reveals

Primary Prevention of Cardiovascular Disease with a Mediterranean Diet with Walnuts.  (PRNewsFoto/California Walnut Commission)

  By Sally Guyoncourt in INews.   Eating a Mediterranean diet could reduce the effects of osteoporosis in the elderly, say scientists. It has long been known the Mediterranean diet, rich in fruit, vegetables, nuts, unrefined cereals, olive oil, and fish, has health benefits for both your heart and waistline. Now a new study, published […]

CBT & GET – Parliamentary Question

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  From ME Research UK.   The Countess of Mar, Chair of the Forward-ME Group and Patron of ME Research UK has raised a number of points with the Department of Health and Social Care concerning how those affected by ME/CFS can report adverse effects experienced due to participation in Graded Exercise Therapy and/or Cognative […]

Trial By Error: Yet Another Appeal To The Lancet, With More On Board

David Tuller

  By David Tuller, DrPH.   Last month, Professor Racaniello sent Lancet editor Richard Horton an open letter about the PACE trial signed by 94 scientists, clinicians, academics and other experts. The letter, a follow-up from one sent in 2016, cited the study’s “unacceptable methodological lapses” and called for a fully independent investigation. Since Dr Horton has not […]

Beds, Lanterns And A Tipi Bar – Dean’s Park Looks Very Different This Summer !

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From YorkMix.   York Minster’s back garden has never looked like this before. Part of Dean’s Park has been converted into an outdoor chill zone, complete with cushion-bedecked platforms, lanterns and a tipi bar. These are now in place for the first Heart Of Yorkshire Festival, organised by York Minster. The event runs throughout the […]

Double Truth: Medieval story Reveals How You Can Believe Two Conflicting Positions At Once

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  By Ann Giletti in The Conversation.   Identity can compel you to reject the truth – even when you have evidence proving it. We see this today with the US political establishment: Trump supporters can look at two photos of his inauguration and say the largely empty Mall is full. This problem is far from […]

New Harvard Chronic Fatigue Syndrome (ME/CFS) Research Center Fulfills Crucial Need

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    By Cort Johnson in Health Rising.   In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million –  to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic fatigue syndrome (ME/CFS) research centers are now found at two […]

A Morass Of MUS

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From the Spoonseeker.com Blog.   As you are probably aware, here in the UK, NICE are currently engaged in the lengthy process of revising their guidelines for ME/CFS. The current guidelines recommend the use of GET (graded exercise therapy) and associated CBT (cognitive behavioural therapy), the latter being used in this case to persuade patients that GET is […]

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