Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

ME/Chronic Fatigue Syndrome


  From the Quadram Institute.   Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a severely debilitating condition that is thought to affect up to 250,000 people in the UK. Symptoms include widespread pain, extreme tiredness and an inability to concentrate. The causes of ME/CFS aren’t known, and there are no effective […]

Get Your Hands On Revolutionary Business Software In York


  From YorkMix.   It has been four years in the making – but now a multi-million pound tech project has been released which is set to revolutionise business training. And York companies can be among the first to try it at a free workshop. SimVenture Evolution is a ground-breaking online business strategy game. Players launch […]

A Letter To The ME/CFS Research Community (+ Doctors, + Patients)

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  By Amy Proal in Microbe Minded.   Dear ME/CFS research community, My name is Amy Proal. I am a microbiologist who also suffers from ME/CFS. I first became ill with ME/CFS in 2004, while studying medicine at Georgetown University. Almost immediately I began to research the disease from bed and wrote my undergraduate thesis on […]

Family-Run York Business Wins ‘The Country’s Highest Food Accolade’


  From YorkMix.   It’s been one of York’s favourite food stores for years – and now its delights have earned national recognition. Rafi’s Spicebox has been named the Best Independent Retailer in the 2017 Observer Food MonthlyAwards. Now in their 14th year, the awards honour the finest in British food and drink. This year’s awards […]

Treating Autism And ME/CFS: Could One Drug Do Both ?

Drugs Trials

    by Cort Johnson in Open Medicine Foundation.   Autism is one of the most difficult conditions to treat. A neurodevelopmental disease that typically strikes before the age of two, about a dozen different areas of the brain are affected. Autism is characterized by social withdrawal, problems with both verbal and non-verbal communications and […]

Solving The Mystery Of Chronic Fatigue


    By Matt McMillen in Webmd.   It is a very complex, very real physical disease, and one that for years has caused uncertainty, confusion and even dismissal by many medical professionals. But now, thanks to a new, multi-year grant, there is hope for a better understanding and treatment for chronic fatigue syndrome, or CFS. In […]

Get A Prescription Prepayment Certificate


  From Gov.UK.   You can buy prescription prepayment certificates (PPCs) from the NHS which may make your prescriptions cheaper. You can only get a PPC if you live in England. A 3 or 12 month PPC covers all your prescriptions for that period, no matter how many you need. A prescription costs £8.60 per item, but a PPC costs: £29.10 for 3 […]

Thinking Critically About ME Research


  By Evan Odell   The laziest kind of statistical research is that which relies solely on presenting the results of statistical tests, without making any meaningfull effort to critically interpret the results. Prima facie acceptance, without critical inquiry, leads to noise being misidentified as meaningful, to bad science and bad policy. With that in mind, it […]

Mark Kermode Reviews ‘Unrest’ On Simon Mayo’s Show On BBC Radio 5 Live


  The Jen Brea ME film ‘Unrest’, about her story and struggle with Myalgic Encephalomyelitis (ME) is coming to City Screen York on 1st November 2017.  This film has won awards at The Sundance Film Festival and is a must see for all wishing and needing to know more about an illness affecting over 800 […]

Advisor Says 30 Local Claimants With Terminal Cancer Had PIP Rejections Overturned


    By John Pring in Disability News Service.   A welfare rights advisor has described how at least 30 local benefit claimants with terminal cancer have had their claims rejected in the last year, with every one of the decisions later overturned by an appeal tribunal. In every case, the claimant has been terminally-ill […]

£3m Fund Will ‘Revolutionise’ UK Airport Security, Putting An End To Laptop Hassle


  By Katie Grant in iNews.   The Government will unveil on Friday a £3m fund to “revolutionise” airport screening so that passengers are no longer required to remove their laptops from their hand luggage during security checks. Companies and universities will be invited to bid for the money that is intended to support projects […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome


    From the CDC (Centers for Disease Control and Prevention) Website.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness that affects many body systems. People with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have severe fatigue and […]

Mike’s EU Marathons – Amsterdam Report

Mike Amsterdam

    From Mike Harley’s EU Marathons Website.   Ahead of my trip to Amsterdam I’d made contact with a number of Dutch patient groups and associations who had all been very interested in supporting my challenge.  I interviewed M.E patients Anil and Frank along with campaigner and carer Rob, click here to read what they had […]

Flood Warning Service Improvements Go Live For Winter


  From The Yorkshire Times.   People who live near the River Foss in York will now be able to benefit from an improved flood warning service from Wednesday, October 18. After the Boxing Day 2015 floods, one of the recommendations of the York Flood Inquiry report was for the Environment Agency to conduct a […]

Is It Just ME Or Is This A Real Disease ?


  By George Winter in The Medical Independent. George Winter examines the evolution of recognition for myalgic encephalomyelitis (ME). In 1926, TS Eliot, then editor of The Criterion, published Virginia Woolf’s essay On Being Ill, where she bemoans the “poverty of language” with which to describe illness: “Let a sufferer try to describe a pain in his […]

Trial By Error: Another Letter to NICE’s Sir Andrew Dillon

David Tuller

  By David Tuller.   First, for those who might have missed it, here’s a conversation from This Week in Virology (TWiV), posted a few days ago. Dr. Racaniello and I discuss the CDC, NICE, Esther Crawley’s ethically challenged behavior, the CMRC, and other stuff. Second, earlier today, I sent the following e-mail to Sir Andrew Dillon, […]

Why (ex)Hurricane Ophelia Took A Wrong Turn Towards Ireland And Britain – And Carried All That Dust


  By Alexander Roberts in The Conversation.   Hurricane Ophelia, by then downgraded to Storm Ophelia, reached Ireland on Monday October 16. At the time of writing there had already been three deaths and countless reports of severe damage to buildings and fallen trees. Unlike other severe storms to reach Ireland and Britain, such as […]

The Ambiguous Term “ME/CFS”: Why ME And CFS Cannot Be Combined

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    By Jerrold Spinhirne on his Facebook Page.   Increasingly, researchers, doctors, advocates, and patients are using the mixed term “ME/CFS” as if it had some clear, specific meaning and referred to some identifiable disease. In actuality, however, the mixed term “ME/CFS” is ambiguous, logically incoherent, and a major impediment for making progress in research […]

The York ME Community Links With Disability Employment Company evenbreak

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    The York ME Community has linked up with The Disability Employment Company evenbreak. This is a company run by disabled folk who believe that disabled people deserve an ‘even break’. Evenbreak, a not-for-profit social enterprise, was formed to achieve three aims: • To help inclusive employers attract more talented disabled people; • To […]

Can Positivity Cure Any Disease ?


    By Anil van der Zee, in his Capture, Dance, Words Blog.   As long as I have been suffering from my illness I’ve read and have also had some people tell me that the cause and course of my disease rests in some way in my own hands. I have always found that remark […]

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