Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

The Guernsey Literary & Potato Peel Pie Society: A Post-War Tale Of Love And Intrigue

Film

  From SAGA Magazine.   Based on the best-selling novel of the same name, The Guernsey Literary & Potato Peel Pie Society is a compelling romantic drama with an intriguing mystery at its heart. Downton Abbey star Lily James plays free-spirited writer Juliet Ashton, who forms a life-changing bond with the eccentric Guernsey Literary and Potato Peel Pie […]

It’s Time To Be Real About Myalgic Encephalomyelitis

Lonely

  By Jenny McGibbon in The Mighty.   Invisible illnesses are a funny thing, because if you’re honest about them then it’s often perceived as being negative, and if you’re being positive about them 24/7 then really you’re just lying. So with that, this post might come across as negative to a few of you, but I’d […]

Being A Patient ‘A Full-Time Job’

Health

  By Nick Triggle in BBC News.   Being a patient is a “full-time job”, say researchers, because more people are likely to have multiple conditions. The Academy of Medical Sciences said doctors were seeing a clustering of different physical and mental health conditions in a single patient never previously seen together before. It means […]

Fibromyalgia, Chronic Fatigue Patients Show Similar Issues With Postural Control In Study

Postural Control

  By Jose Marques Lopes, PhD in Fibromyalgia News Today.   Patients with fibromyalgia and patients with chronic fatigue syndrome (CFS) both show similar differences in postural control in comparison with healthy subjects, researchers found in a study. The study, “Lower regulatory frequency for postural control in patients with fibromyalgia and chronic fatigue syndrome,” appeared in the journal PLOS ONE. Patients […]

15 Secrets Of People Who Can’t Work Because Of An Illness

Frustration Chronic Illness

  By Paige Wyant in The Mighty.   If you have a chronic illness, you may know what it feels like to be a “full-time patient.” Between the physical and emotional symptoms, constant doctor appointments and numerous tests and procedures (not to mention keeping track of it all), being chronically sick can become a full-time job in itself. You […]

Devastating ME Leaves Teen Girl “Unable To Leave The House”

Lonely

  By Luke Traynor in The Echo.   A 17-year-old girl has become virtually housebound because of ME, which at its worst leaves her unable to lift her head from the pillow. Rosie Halsall has suffered from the illness since she was nine, and last properly attended school in Maghull in 2014. The teenager now has a bedroom on […]

Trial By Error: Professor Michael Sharpe’s Gaffe On Australian Radio

David Tuller

  By David Tuller, DrPH.   It’s Thursday morning in Australia, and I’ve just arrived in Brisbane after a red-eye from Perth, with a week left to go on my tour Down Under. Of course I’m backed up on things I need to write about, and hope to have some down time soon to pull […]

BBC Radio York Discussion On ME With The York ME Community

Radio

  For those interested in hearing our chat on BBC Radio York about ME Awareness today, it starts at the 1 hour 16 minute point. Thanks to all at Radio York for their help in this, and contributors, Lucie Ware and Chris Afford.   To listen in, click on the link below:   Link to […]

My Secret Life – M.E/CFS Kids And Motherhood

ME2

  By Sarah Wells in My Stripey Life.   Having two lives, one of which you do not want other’s to know about. The life that everyone believes is your “true” life is one of complacency and subtlety, one in which the person is generally unassuming. However, in the second, “secret” life, the true essence […]

I’m Struggling To Live At Home. Can I Get Help ?

Age

  From Independent Age.   If you’re finding it difficult to manage at home you can get help. There might be some adaptations that could make your life easier, like a stairlift or a downstairs bathroom. You might be able to get financial help from your council to help pay for equipment or adaptations. Sometimes just a small […]

Trial By Error: Two Interview Podcasts, and “Conflicts of Interest”

David Tuller

  By David Tuller, DrPH.   For those not yet sick of my voice, here are two more chances to hear me reiterate variations of my message: On Monday morning, I was interviewed in Perth for the radio show Mornings with Gareth Parker, on the 6PR882 Talk Radio network. (Never mind that the description in the link […]

Blue Badge Scheme

access-bluebadge

  From Which ? Elderly Care.   If a person has a disability that affects their ability to walk, they may be entitled to a Blue Badge disabled-parking permit. In this guide, you’ll find information on: 1. What is the Blue Badge scheme? 2. Eligibility 3. How to apply 4. Blue Badge renewal 5. Using your Blue Badge What is […]

50 Tonnes Of Dales Stone Heads To London To Showcase Yorkshire At RHS Chelsea

Dales

  From The Yorkshire Times.   35 tonnes of walling stone and 15 tonnes of glacial boulders are being collected in the Dales for the Welcome to Yorkshire show garden at RHS Chelsea. It is all on loan from the Bolton Estate to make sure this year’s garden at the prestigious flower show in London […]

Top 5 Accessible Cities For Wheelchair Users

Air Travel

  From Disability Horizons.   With the sunny weather and summer well and truly on its way, it’s time to start planning your holiday. So to help you prepare, we’ve asked Susie, who runs wheelchair travel reviews and resources website wheelchairworld.org, to give us a run down the top five accessible cities to visit if you […]

What Does The New Financial Year Mean For Me ?

Benefits

  From Independent Age.   These are the main changes you need to know about for the start of the new financial year (1 April) and tax year (6 April), including changes to State Pension and benefit rates. The figures listed below are the weekly amounts you’ll get unless stated otherwise.   To read the rest […]

I Am Stuck In The Prison That Is ME

ME 1

  By Ellie Bunce in HUFFPOST.   I had hopes of being an athlete – now I’m bed-bound with an illness some people think doesn’t exist. ME, two simple letters that can rip apart everything you worked for and everything you ever dreamt of. Myalgic encephalomyelitis is a soul destroying disease that leaves so many […]

Boost Your Kidney Health

Kidney

  By Patsy Westcott in SAGA Magazine.   One in ten Britons have chronic kidney disease (CKD) – soaring to one in two by the age of 75. A further million, meanwhile, have the condition but are unaware of it. Worryingly, half of those with the most common risk factors – high blood pressure, diabetes and disease of the heart and […]

Does The Microbiome And Virome Contribute To Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ?

Research

  By Fiona Newberry, Shen-Yuan Hsieh, Tom Wileman, Simon R. Carding in Clinical Science.   Abstract Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) (ME/CFS) is a disabling and debilitating disease of unknown aetiology. It is a heterogeneous disease characterized by various inflammatory, immune, viral, neurological and endocrine symptoms. Several microbiome studies have described alterations in the bacterial component of the microbiome (dysbiosis) consistent with a […]

Loneliness In Chronic Illness

abrahms-caregiver-loneliness

  By The Unchargeables.   It is a thing that is with you all the time and never leaves. This nagging thing, never leaving you alone. Sometimes it’s lurking in the shadows and sometimes it’s loud and right in your face. But at all times it’s lonely. It’s lonely when you get invited to an […]

Royal Parks Half Marathon

detail of the legs of runners at the start of a marathon race

  From Invest in ME Research.   Invest in ME Research have secured FIFTEEN places in the Royal Parks Half Marathon on Sunday 14th October 2018. This will be another great opportunity for the charity to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – […]

When You Can’t Just ‘Push Through the Pain’

Chronic Pain

  By Stacey T in The Mighty.   This post may get a little soap-box-like, but it’s something I need to talk about because it’s become a huge issue for me. So, most people have heard the phrases “pushing through pain,” “no pain, no gain” and similar ones. But when you have chronic illnesses or […]

Trial By Error: My Australian Tour, Continued

David Tuller

    By David Tuller, DrPH.   Last week, I spent three days in Hobart, on the island of Tasmania. Besides strolling around looking for cafes where I could drink decent coffee and write, my main work-related activity was giving a talk at Menzies Institute for Medical Research, part of the University of Tasmania. About 40 people attended, […]

How Much Does It Cost To Charge Your Phone Or Tablet ?

Smart Phones

  From SAGA Magazine.   Mobile devices such as iPhones, iPads and Android smartphones are far more powerful than mobile phones of old. Crammed with computer processors, ablaze with brilliant screens and sporting decent speakers means a limited battery life that leaves you constantly hooking your device up to the mains for a recharge. Worse […]

Free Bus Passes For Elderly And Disabled Protected ‘For The Foreseeable Future’

Disability

  From Welfare Weekly.   Free off-peak bus travel for older and disabled people in England will continue “for the foreseeable future”, after the Government amended legislation so that the concessions will no longer face a review every five years. Bus passengers aged over 65 or with a disability have been entitled to travel free […]

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