Welcome To The York ME Community

Firstly, let me just say that The York ME Community is not a charity. I will not be asking you to put your hands in your pockets for cash. What I believe we need so much more at the moment is awareness of the illness and for that we need people who are learning about ME and therefore able to tell others. There are ME charities, and if in the future you or your business wish to do a charity run or whatever in aid of ME, I will happily help and support that aim.

Shopping, Shows And Six Days Of Style – Fashion City York Plans Its Biggest Ever Event


    From YorkMix.   Fashion City York will be back with a bang this year as it presents Six Days Of Style. The festival of everything that’s snazzy, classy and chic returns in April. Thanks to a £15,000 funding boost from York BID, it will be bigger and better than ever. Fashionistas will be […]

‘On Bad Days The Slightest Move Can Cause Anguish. I Can’t Speak And I Can’t Concentrate On Anything’


    By Isabella Eckert in The Tab.   The reality of living with ME, the disease doctors can’t diagnose It started at the age of 10, when L.A. caught a common stomach bug. She began sleeping for 20 hours a day, waking up to be “violently sick”, then falling back to sleep. No one knew what […]

The Guilt of Prioritizing Yourself When You’re Chronically Sick

Chronic Illness

    By Meridith O’Connor in The Conversation.   I’m in a constant state of risk, using my energy towards something with the potential to cost me other life events later. It’s a difficult balance, knowing when to push through and feel sick later, or prevent the latter by taking precautionary care of myself first. Everyone […]

Invest in ME Research – Integrity in Media and Research


    A week can be a long time in ME. Although Invest in ME Research has been highlighting plans to establish a Centre of Excellence for ME for some years, and although our supporters have been raising funds for the UK rituximab trial since we announced plans for that in 2013, it has suddenly […]

Treating Chronic Fatigue Syndrome (ME/CFS): The IACFS/ME Conference Overviews Part V

Cort Johnson

    By Cort Johnson in Health Rising.   Treatments are, of course, where the rubber meets the road. The Oct 2016 conference featured a different chemotherapy/autoimmune drug that appears to be helping, a drug that helped one ME/CFS/POTS patient to fully recover, how exercise tests may be uncovering drug combinations to prevent PEM, a […]

Family Secrets Of York’s Disgraced Railway King

George Hudson

    By David Behrens in The Yorkshire Post.   He was the Railway King of Victorian England, and the grounds of his stately home in the Yorkshire Wolds held what was probably the world’s biggest train set. George Hudson was a pioneering figure of Britain’s emerging railway network, but his career ended in disgrace and […]

Chronic Fatigue Syndrome: Diagnostic Tests, Treatment And Prevention Urgently Needed

Blood Test

    By Clarissa K. Wittenberg in The Huffington Post.   This blog was inspired by the good news that the National Institutes of Health (NIH) has doubled its research budget for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). However, it was shocking to see that the increase was from $7.6 million last year to $15 million […]

Shed Seven Are Back ! Legendary Band Launch Brand New Album

Shed Seven

    From YorkMix.   Shed Seven are back with their first new studio album in 16 years. The legendary indie band announced today that they have recorded a brand new album filled with original tracks. And they are also planning their “biggest tour ever” – #Shedcember2017. They said on their Facebook page on Monday […]

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